Hi, latzable ... I'm not familiar with the website you refer to, but I have to caution you that most of the people on this forum (and no doubt on other similar patient-support forums) have no medical training whatsoever, including me. Wright does, so he will sometimes answer technical questions, and you can trust his responses.
The purpose of this forum is for moral support and sharing tips on how to live with this disease. Naturally, we get into discussions of symptoms, etc., but these should not be used as medical references.
The only one who can truly tell you what's going on with your body is your own neurologist. Comparing responses from different people on different Internet sites really is a waste of time, and it's probably going to be very misleading, as well as confusing.
After saying all that, I have to admit I've spent entirely too much time doing exactly what you're doing ... but the Internet is not a good source for medical information, unless you stick to "official" sites, like the various ALS societies or university sites.
I go into all my appointments with a list of questions, and usually get straight answers from the neuro.