Marvelfan
New member
- Joined
- Dec 30, 2021
- Messages
- 6
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- IE
- State
- NA
- City
- Dublin
Hi All. I am a 30M from Ireland. Was just browsing through the forum and want to thank all the contributors and commenter for their effort and input.
My symptoms began circa 3 months ago and started with twitching in my left calf and over the course of 8 weeks has spread slowly to my thighs, glutes, shoulders, forearms, tounge and temples. Immeditaly preceeding the 3 months I was hospitalised after taking atvorstatin 10mg for 4 weeks. I developed myositis in my left arm and was put on corticosteroids for 2 weeks. A lot of my left shoulder and arm has muscle wasted due to the myositis. However I still have motor function. Ironically its that arm that doesn't have any twitching. In the hospital I underwent a brain ct(clear) shoulder mri(odema) blood tests(ck-mm 12000)and a muscle biopsy(awaiting results)
I don't really have too many questions but wondering if anyone has any input on below I would greatly appreciate. Many thanks again to everyone on here with their precious time.
Can PALS generally feel their fascics? IE is it in anyway discomforting when they pop?
Can PALS determine before a facic occurs, the location and exact time it pops IE is there a buildup nerve message sensation before it pops?
When you describe clinical weakness in the must read posts. Is clinical weakness the absolute inability to perform the task or is there any situation where clinical weakness but can still perform a task to some extent?
Is it normal for a neurophysiologist to only examine 3 muscles? I am from Ireland and just wondering if that is uncommon generally.
How reliable in ppls experiences are the clinical examination tests that a neurologist performs? IE reflexes,babinski,hofmann etc
With ALS does the atrophy happen soon after onset of symptoms or is it very far into disease course?
Does the disease cause direct atrophy or is it unused muscle that causes it.(saw conflicting info on that)
Has anyone had experiences taking a statin for a short time and developing ALS?
Do PALS experience a invisible worms sensation in the bottom of their feet?
Many regards
Donal
My symptoms began circa 3 months ago and started with twitching in my left calf and over the course of 8 weeks has spread slowly to my thighs, glutes, shoulders, forearms, tounge and temples. Immeditaly preceeding the 3 months I was hospitalised after taking atvorstatin 10mg for 4 weeks. I developed myositis in my left arm and was put on corticosteroids for 2 weeks. A lot of my left shoulder and arm has muscle wasted due to the myositis. However I still have motor function. Ironically its that arm that doesn't have any twitching. In the hospital I underwent a brain ct(clear) shoulder mri(odema) blood tests(ck-mm 12000)and a muscle biopsy(awaiting results)
I don't really have too many questions but wondering if anyone has any input on below I would greatly appreciate. Many thanks again to everyone on here with their precious time.
Can PALS generally feel their fascics? IE is it in anyway discomforting when they pop?
Can PALS determine before a facic occurs, the location and exact time it pops IE is there a buildup nerve message sensation before it pops?
When you describe clinical weakness in the must read posts. Is clinical weakness the absolute inability to perform the task or is there any situation where clinical weakness but can still perform a task to some extent?
Is it normal for a neurophysiologist to only examine 3 muscles? I am from Ireland and just wondering if that is uncommon generally.
How reliable in ppls experiences are the clinical examination tests that a neurologist performs? IE reflexes,babinski,hofmann etc
With ALS does the atrophy happen soon after onset of symptoms or is it very far into disease course?
Does the disease cause direct atrophy or is it unused muscle that causes it.(saw conflicting info on that)
Has anyone had experiences taking a statin for a short time and developing ALS?
Do PALS experience a invisible worms sensation in the bottom of their feet?
Many regards
Donal