bellard
Member
- Joined
- Feb 28, 2007
- Messages
- 18
- Reason
- Loved one DX
- Country
- US
- State
- Arkansas
- City
- Fayetteville
Hello,
I am happy I found this forum, and it has so many helpful people who are willing to share, and help all of us learn and grow, as we deal with what has become the monster of our lives. Though I wish with all my heart that someone would slay this monster, I do not see that happening today, but I can always hope and will.
I have posted questions to give me help with my mom and how to best support her and help her, and have really had some great guidance.
My question is how many people with ALS, new or old, do not participate in groups, discussions, and learning. I spoke with my brother last night, and he said, it is not that Mom is scared to see anyone else with ALS, it is not denial, she just does not want to see it at all. I believe that she also wants to hide it from her kids, which we are all grown, but that has always been her mothering instinct, to protect from fear, or hurt.
So as we meet families up here, in our support group, that are fighting the monster, sharing information, and seeking support and knowledge, how many are out there, hiding, not sharing, not wanting to see, know, and learn?
We leave tomorrow morning for moms clinic on Friday, and we are all nerveous, but I guess Mom is most nerveous. I appreciate all the support and guidance so that I can be better for her.
Thanks
Bellard
I am happy I found this forum, and it has so many helpful people who are willing to share, and help all of us learn and grow, as we deal with what has become the monster of our lives. Though I wish with all my heart that someone would slay this monster, I do not see that happening today, but I can always hope and will.
I have posted questions to give me help with my mom and how to best support her and help her, and have really had some great guidance.
My question is how many people with ALS, new or old, do not participate in groups, discussions, and learning. I spoke with my brother last night, and he said, it is not that Mom is scared to see anyone else with ALS, it is not denial, she just does not want to see it at all. I believe that she also wants to hide it from her kids, which we are all grown, but that has always been her mothering instinct, to protect from fear, or hurt.
So as we meet families up here, in our support group, that are fighting the monster, sharing information, and seeking support and knowledge, how many are out there, hiding, not sharing, not wanting to see, know, and learn?
We leave tomorrow morning for moms clinic on Friday, and we are all nerveous, but I guess Mom is most nerveous. I appreciate all the support and guidance so that I can be better for her.
Thanks
Bellard