olly
Extremely helpful member
- Joined
- Jan 10, 2008
- Messages
- 2,743
- Reason
- PALS
- Diagnosis
- 11/2007
- Country
- uk
- State
- uk
- City
- uk
hi al
i am currently getting a diagnosed of pls,i have all umn signs/symtoms.ive been ill 8yrs.
the past 2yrs i have started to deteriorate faster ,especially past year.
i was told ive developed hypotonicity(loss of mucle tone,and loss of ability of muscle to contract.)this is not same as atrophy or weakness but more loss of function.
its a lmn sign/symptom caused by lmn lesion.in mnd it can be proressive and fatal as it effects respritory muscles.i asked neuro about it but was reluctant to answer.
i also have respritory problems, arrythmias,hypotention,breathlessness,and can have blackouts.my blood test was ok and sodium levels normal,but neuro said i have to increase my salt intake.i found on web sodium/potassium channels can be damaged in mnd(if you go to wikipedia it goes in detail all about u/lmns and chemical channels)it said sodium channels may become blocked by buildup of potassium so a muscle cant contract properly.
so im in limbo at moment ,not sure now if its pls/pls changing to als/or umn onset als.
going to have emg,any thoughts? i would welcome them with you being most exsperienced.hope you are ok,best wishes caroline.
i am currently getting a diagnosed of pls,i have all umn signs/symtoms.ive been ill 8yrs.
the past 2yrs i have started to deteriorate faster ,especially past year.
i was told ive developed hypotonicity(loss of mucle tone,and loss of ability of muscle to contract.)this is not same as atrophy or weakness but more loss of function.
its a lmn sign/symptom caused by lmn lesion.in mnd it can be proressive and fatal as it effects respritory muscles.i asked neuro about it but was reluctant to answer.
i also have respritory problems, arrythmias,hypotention,breathlessness,and can have blackouts.my blood test was ok and sodium levels normal,but neuro said i have to increase my salt intake.i found on web sodium/potassium channels can be damaged in mnd(if you go to wikipedia it goes in detail all about u/lmns and chemical channels)it said sodium channels may become blocked by buildup of potassium so a muscle cant contract properly.
so im in limbo at moment ,not sure now if its pls/pls changing to als/or umn onset als.
going to have emg,any thoughts? i would welcome them with you being most exsperienced.hope you are ok,best wishes caroline.