Ozzy
New member
- Joined
- Oct 18, 2006
- Messages
- 3
- Reason
- PALS
- Country
- US
- State
- New York
- City
- Glens Falls
Hi ... I am new at the site ... I was diagnosed with Multifocal CIDP w/ Neuromytonia overlap (I am in my 4th year) - which both are supposed to be autoimmune. Over the last year I have gone to two canes and severe breathing overnight problems and dysphagia progression. The breathing is especially compromised and I am on O2 and CPAP at night (lungs feel like they are hardly moving at times). I have been on all sorts of autoimmune suppression drugs ... but this disease is progressing rapidly. In the AM I feel punch drunk, slurring and hardly able to move and breathing muscles very sore ... could this be turning into an MND-like disorder perhaps - my Neuro, GP and Lung Doc are all out of answers. Anything on info would be a great help - thanks very much!