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Jric80

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I recently had an appointment with my neurologist and their pain management specialist, since I’ve continued to have pain in face, arm and leg for about a year. This is in addition to muscle twitching for 12 months (random but primarily in calves at rest). The pain in face also impacts my tongue affecting speech. I’ve mentioned all of this in prior posts.

The pain is clearly affecting my muscles because the pain management specialist performed an exam, and mention my left calf muscle seemed smaller than the right. The left leg is where I continue to have pain constantly.

My question is can ALS affect the muslces early on that cause joint and limb pain, creating atrophy in the muscles?

I’ve read everything on pain not being a factor. But I’ve also heard of pain early on in many patients. Please, if there’s any help or advise, I really Would appreciate it. This recent observation by the doc is now making me think this year long, undiagnosed condition, is now damaging muscles. Thank you!
 

ShiftKicker

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Jric80

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They have made their observations without offering any guidance outside of trying to manage pain. I fee Like they’re waiting to see what happens, as they cannot explain why I’ve had these issues for a year. I look at them as I continue to describe what’s going on, and they don’t have an idea. ALS has not been mentioned. But I know how in supposed to feel, and with every other test already completed, I continue to worry what’s next.

They’re prescribed Lidocaine IV treatment to help with pain. It’s 4 hours once per week. Not a great scenario for a 38 year old with 3 kids and a wife recovering from cancer treatment. It’s just so difficult to understand.

I’ve had many weeks just dealing with the pain. But after she indicated she sees some muscle deterioration I’m very concerned.
 

Bestfriends14

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You have described so much pain yet nothing of ALS...not once. Your symptoms and medical appointments attest to that. Best you move on from this forum now. Perhaps you may want to seek a forum that focuses on chronic pain in hopes of getting an answer more geared to what is going on with you.

You don't have ALS but the terminally ill folks here do. Please remember that when seeking information for disease you don't have. It's not fair and it drains energy of the people here.
 

lgelb

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You are incorrect to say "the pain is clearly affecting my muscles." It may seem like nitpicking to say that it's the condition causing the pain that's affecting your muscle size (maybe -- it could also be disuse because you feel pain there), but it's an important distinction since ALS does not cause the pain you describe, especially before immobility. If your pain is so severe that you need IV analgesia, when you are still walking and talking, that is most definitely not ALS. Continuing with the diagnostic process and perhaps getting a second opinion would be my suggestion. But you're in the wrong place here.

Best,
Laurie
 

Jric80

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Thank you all for the replies. I greatly Appreciate it! I will Continue to work with my doctors. In addition to my other issues, I’ve had twitching of my soft palate and uvula along with throat pain. Has this been an issue for anyone?
 

Atsugi

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Jric, you're asking about a disease you don't have. Makes no sense. Start over by seeing your family doctor and don't think about ALS anymore, it ain't happening.
 

Jric80

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Thanks Mike. I know these posts have continued beyond even what I thought would happen. Can I please ask one follow up question? The issue I'm having with the uvula twitching has me concerned. Can anyone offer any thoughts or guidance on whether this could be related to ALS?
 

Bestfriends14

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No you cannot since all your questions have already been answered numerous times, so much in fact, that your previous thread was closed.

You do not have ALS, so you being here is rather pointless and impolitely infringing on PALS and CALS precious time. You have been cleared of ALS, and for whatever reason, you are incredibly ungrateful for this and I have no idea why. This is not a general health forum or a forum to hand hold those with health anxiety issues.

Good luck to you in the future and have a happy Christmas. No need to be here anymore and that is a very good thing. Try to be grateful for that, won't you?

Take good care.
 

codyclan

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Okay, enough now. Multiple people here, multiple doctor visits have all confirmed that what is impacting you is NOT ALS. Twitching is meaningless as a diagnostic, no matter where the twitching occurs. You have been told this repeatedly and yet you continue to ask basically the same question. You have something going on but it is not ALS and continuing to frequent this site does not help. Time to move on, please.
Best wishes,
Tracy
 
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