question about pain relief

Status
Not open for further replies.

dean mcgregor

New member
Joined
Apr 7, 2008
Messages
5
Reason
PALS
Diagnosis
04/2001
Country
ca
State
bc
City
vancouver
i have been pain in my limbs, especially at night when i can't shift them. does anyone know of any nature meds that will help.
 

CindyM

Moderator emeritus
Joined
Sep 17, 2006
Messages
3,543
Reason
Learn about ALS
Country
US
State
New England
City
Anytown
I don't know about meds or supplements but some PALS swear by a memory foam mattress...
 

beaner1

Active member
Joined
May 8, 2007
Messages
58
Reason
CALS
Country
CA
State
Alberta
City
Redcliff
Hi Dean,
My husband is receiving morphine for his pain - his occurs mostly at night too. He is also unable to move his legs by himself. Just a note too - he is quite advanced - cannot move himself at all, and barely has the use of his hands/arms. He's currently hospitalized (has been for 6 weeks) for pneumonia and a heart attack - only 47 yrs old!
Beaner
 

cukita99

Distinguished member
Joined
Jun 12, 2007
Messages
361
Reason
PALS
Country
US
State
tx
City
el paso
hi, i to have pain in my legs at night n it keeps me up. i ask my neuro but he said there is nothing he can do. i have to tough it out. i hate nights. i can still bend my legs on my own but i cannt turn my self all the way, i manage to go from side to my back on my own, which helps relief presure to my hip. sometimes my son will hear me n wakes up to turn me.
 

Lorie

Senior member
Joined
May 17, 2007
Messages
546
Reason
Loved one DX
Country
Uni
State
Alabama
City
Mobile
cukita

Nothing he can do? BS-Get another Doctor! I will post to this again later.

Lorie
 

olly

Extremely helpful member
Joined
Jan 10, 2008
Messages
2,732
Reason
PALS
Diagnosis
11/2007
Country
uk
State
uk
City
uk
cukita

i am worried about you, you don't seem to have any medical care at all . what happened with the alsa or mda. like lorie said you need to change your doctor he is sooooo wrong. the pain is probably muscle spasms, i know mine can be much worse on a night and i also get clonus in my legs/abnormal movements. you can get muscle relaxants for this like baclofen it is a standard med and probably wont cost much. your doctor sounds like another jerk to add to the long list i have been told about,get rid of him you deserve better.
caroline
 

dean mcgregor

New member
Joined
Apr 7, 2008
Messages
5
Reason
PALS
Diagnosis
04/2001
Country
ca
State
bc
City
vancouver
pain relief

thanks everyone, the memory foam mattress sounds good. i have tried over the counter meds, no good. i am also quite advanced - cannot move himself at all, and barely have the use of my hands/arms. my neuro also said there is nothing he can do but prescribe heavy duty drugs. i do not want that because of the constipation side effect. i have tried lakota but it only gives temporary relief. thanks everyone
 

cukita99

Distinguished member
Joined
Jun 12, 2007
Messages
361
Reason
PALS
Country
US
State
tx
City
el paso
caroline, dont worry about me, there r some worst then me. i dont have any medical care cuz i have no ins. n everything is expensive. als n mda , well i tried to get help through all the places they suggested but u have to have no money. i guess i should b homeless.
 

dean mcgregor

New member
Joined
Apr 7, 2008
Messages
5
Reason
PALS
Diagnosis
04/2001
Country
ca
State
bc
City
vancouver
pain relief

well i got the foam mattress and no more pain thanks everyone
 
Status
Not open for further replies.
Top