mrsharris
New member
- Joined
- Apr 24, 2018
- Messages
- 5
- Reason
- Loved one DX
- Diagnosis
- 05/2017
- Country
- IR
- State
- NY
- City
- Dublin
My dad has respiratory onset ALS diagnosed in May 2017, he still has full use of his hands and his speech and swallow are only minimally affected but he is really really weak can only walk assisted for 2 or 3 steps so he has a power wheelchair for getting around.
At first he would only need the NIPPV breathing machine at night but now he needs it all the time. My question is... how do you guys manage with the nippv machine on the wheelchair? have you attached it somehow? currently dad carries his (portable) machine on his lap if we are out and about in town but its pretty heavy so i don't think that's ideal.... any suggestions?
At first he would only need the NIPPV breathing machine at night but now he needs it all the time. My question is... how do you guys manage with the nippv machine on the wheelchair? have you attached it somehow? currently dad carries his (portable) machine on his lap if we are out and about in town but its pretty heavy so i don't think that's ideal.... any suggestions?