Question About Manual Dexterity?

[guwainengle]

I appreciate all the positive support- And at this time, I can only hope that the ALS specialist is correct. I have been tested for Lymes two times and the results were negative,but the other suggestion is worth the pursuit. I am positive the shakyness is getting worse and there is a little bit of soreness in my shoulder muscles also. I can tell when I attempt to work out that my strength has been comprimised, but not substancially. I have heard the suggestions that it is all stress and anxiety and nerves-- from the doctors- but after feeling like I do - that is a tough one to accept. After reading alot on ALS, it just seems like many of my symptoms I had prior to the reading have matched up. I am only a little more than a week away from another visit to the ALS clinic and if this time we have positive news I will have to look at any other possible answers. Wouldn't you think that a specialist that is in neuromuscular research would suggest other conclusions? or make attempts to identify other neuro malfunctions. I would think so. And my final bit of concer is that because ALS is so difficult to diagnose-- How can a specialist say no to ALS?

G

 

[patricia1]

lymes

The gold standard test for lymes is a Spinal Tap Pat

 

[puzzled36]

I asked that. Mine said that at the time of the EMG you do not have ALS. But they tell you to come back in 6 months - so I think if they were confident we didnt have it, they wouldn't want to retest. Or maybe they are waiting for whatever you do have to fully present itself. How old are you, by the way? I'm 36.

 

[guwainengle]

I am 42 and until this past January -- never had a medical issue.. I guess that is one of the reasons I am extremely worried. Especially when it comes to a neuro issue.

 

[patricia1]

I appreciate all the positive support- And at this time, I can only hope that the ALS specialist is correct. I have been tested for Lymes two times and the results were negative,but the other suggestion is worth the pursuit. I am positive the shakyness is getting worse and there is a little bit of soreness in my shoulder muscles also. I can tell when I attempt to work out that my strength has been comprimised, but not substancially. I have heard the suggestions that it is all stress and anxiety and nerves-- from the doctors- but after feeling like I do - that is a tough one to accept. After reading alot on ALS, it just seems like many of my symptoms I had prior to the reading have matched up. I am only a little more than a week away from another visit to the ALS clinic and if this time we have positive news I will have to look at any other possible answers. Wouldn't you think that a specialist that is in neuromuscular research would suggest other conclusions? or make attempts to identify other neuro malfunctions. I would think so. And my final bit of concer is that because ALS is so difficult to diagnose-- How can a specialist say no to ALS?

G

Most neuro did not give that diagnosed unless they are very sure. It is a death sentence,how could they say that until they are very very sure. I had to wait 6 years and by then even I knew it was ALS it was so obvious. So dont rush them . The harder is is for them the better for you. It means you dont have enough symptoms for the diagnosed. Mine is so slow thats why it took them so long. Good lucjk Pat

 

[Jamiet]

I agree with you.

My ALS spec. told me and my buddy with teh ALS assn., that with 100% certainty, it was not ALS. This was two / three appts. ago. In the beginning they told me it was all anxiety...i needed to get off th einternet, quit looking in the mirror.

Now, last appt....even with reflexes rated at a 5+and all kinda other stuff, i asked her if she was still 100% sure it wasn't ALS....her response was she was "pretty confident".

I'm an accountant... i never give anyone a 10 out of 10 on anything..nobody is perfect, nobody. I never promise to anyone with 100% certainty, anything. Nothing is ever 100%, except of course...birth and death.

It seems my doc may have to apologize to me...i desparately hope she's right, but if she's not....she has caused me alot of real heartache, literally. I mean, with my wife...i've had to hear it all because a doc tells her 100% and here i am telling all of them... they are wrong..

We will know next monday, July 23 who was right. I hope i was wrong.

The moral to thsi story, is that fascis are all over the board...some have them all the tiem, some don't...everybody is different in progression and symptoms and take what the docs say with a grain of salt and trust your instincts and listen to your body more than you listen to anyone else.

If you have any doubt in your doc, get another opinon.

rgds,

jamie