Hi Robin, I'm curious as to why you would think you may have limb onset als? I don't know if I missed some posts or what, but I feel so badly that you're this upset. I thought that your last EMG showed ulnar nerve entrapment (?) which wouldn't have any relationship to ALS.
What did the neuro find during his exam that was abnormal? What were your reflexes? It is my understanding that one would have to have abnormal reflex response.
If this doctor didn't order any other information seeking tests than the EMG, what other testing has been done recently? Have you had an MRI? Was there testing done to check for an underlying auto-immune cause? Did he order a heavy metal test?
I remember having
so many tests done, the EMG's are just a part of it, and, as MND is diagnosed by clinical signs and ruling out other disease, I'd just think that if there hasn't been a course of action mapped out, that your exam did not give the doctor indications that you should be worried about any form of MND.
I hope you're able to get your attention focused away from this, or the time you have to wait until your test is going to crawl by.
I can't give you any personal experience with limb onset, but, if I were you, I'd go get a pedicure, a massage, or something else to pamper myself, and be reassured that your doctor expects to find a normal outcome to the EMG. If he didn't, he'd have mentioned other areas in his exam that he was concerned with, and would have repeated tests you'd had previously, or ordered new ones.
I hope this helps, take care