- Joined
- Aug 15, 2022
- Messages
- 305
- Reason
- PALS
- Diagnosis
- 11/2022
- Country
- US
- State
- NY
Someone told me her father died of ALS. Then she said that if she wanted to know if she has inherited the potential to develop ALS, she would have to be tested annually.
I had genetic counseling and then a cheek swab (waiting on results). If it shows a genetic cause, then the counselor, my spouse and I will have a conversation about whether to offer testing to our older son (home-made -- the younger one is adopted). The counselor didn't say anything about annual testing so I'm confused.
I had genetic counseling and then a cheek swab (waiting on results). If it shows a genetic cause, then the counselor, my spouse and I will have a conversation about whether to offer testing to our older son (home-made -- the younger one is adopted). The counselor didn't say anything about annual testing so I'm confused.