Thegabe101
Member
- Joined
- Jan 16, 2018
- Messages
- 10
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- WA
- City
- Seattle
Hello everyone, I have a previous thread here:
https://www.alsforums.com/forum/do-i-have-als-als/41253-deeply-concerned.html
I do not want to waste anyone's time, and am thankful to Laurie for her valuable insight already.
I am posting because I am would really appreciate anyone's input on their experience with calf atrophy in ALS. A very quick summary: I have had massive, non stop fasciulations for over 7 months now and 3 EMGs, 2 of which were in China and one by a reputable doctor in the states. The last one here made me nervous because there were tons of fasiculations and what I perceived to be fibrillations (metronomic pops at rest) that the doctor seemed to dismiss. I know how arrogant of me that sounds and I don't mean to be. Just feel it's better to give full disclosure. I never received the report unfortunately.
I also have perceived weakness and, most worryingly, confirmed atrophy in my left calf via photos. The neuro I swear at Virginia Mason acknowledged she saw "change in the shape of the muscle" but did not call it atrophy.
I really, really don't want to be obnoxious but the shape and size of my left calf has me terrified and I am wondering how anyone who truly knows ALS experienced calf atrophy. I have been taking photos of my calf since this began and the shape has changed. The left one is considerably smaller (not how it used to be) and there is a sizeable chunk of muscle missing (which I mentioned in my last thread).
The easiest way to get input is to just post photos so I'll do that. I really, really appreciate it and once again am thankful for any input.
https://www.alsforums.com/forum/do-i-have-als-als/41253-deeply-concerned.html
I do not want to waste anyone's time, and am thankful to Laurie for her valuable insight already.
I am posting because I am would really appreciate anyone's input on their experience with calf atrophy in ALS. A very quick summary: I have had massive, non stop fasciulations for over 7 months now and 3 EMGs, 2 of which were in China and one by a reputable doctor in the states. The last one here made me nervous because there were tons of fasiculations and what I perceived to be fibrillations (metronomic pops at rest) that the doctor seemed to dismiss. I know how arrogant of me that sounds and I don't mean to be. Just feel it's better to give full disclosure. I never received the report unfortunately.
I also have perceived weakness and, most worryingly, confirmed atrophy in my left calf via photos. The neuro I swear at Virginia Mason acknowledged she saw "change in the shape of the muscle" but did not call it atrophy.
I really, really don't want to be obnoxious but the shape and size of my left calf has me terrified and I am wondering how anyone who truly knows ALS experienced calf atrophy. I have been taking photos of my calf since this began and the shape has changed. The left one is considerably smaller (not how it used to be) and there is a sizeable chunk of muscle missing (which I mentioned in my last thread).
The easiest way to get input is to just post photos so I'll do that. I really, really appreciate it and once again am thankful for any input.