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I don't say that I have ALS. And my mom's symptoms are very serious. Doctors think it's ALS. Yes, maybe I sound silly, but not knowing our family history and being afraid of this disease so much, makes me over paranoid.
 
Again, you are being silly. If there had been ALS in your fathers family, he'd have told your mother, and obviously from your report, there was none in her family, thus, it's sporadic.

In sporadic ALS the chances of two family members getting ALS are absurdly small. You must realize that there are people here on this forum that have lost a parent, sibling, spouse, or are suffering from ALS themselves. And many that KNOW they are living under the cloud of genetic ALSand have watched it descmate their family.

IF your mom has ALS, you all have my deepest sympathies, but there is absolutely no reason to think it is the genetic form. None at all. Now, if you wanted to hold off having a child to. Are for your mother, that I could understand.

I don't know about midwife school, but I'm pretty sure nursing school teaches the basics of how genetic diseases work.
 
Let me be silly again.. But I read about cases where people write that their parent got ALS, and later parent's sibling also got it. It became familial from nowhere, as nobody had it in previous generations. My mother doesn't have siblings so... If they where..and where healthy, maybe I would be more calm.. But only next generation now can show its sporadic or familial. Maybe it sounds funny my paranoia.. Maybe I am crazy.. But... Maybe I will get tired to be afraid. I hope so.
Thank you so much for trying to make me calm.. Even people who got ALS are trying to make me calm and I feel so ashamed. I always was a coward if talking about serious diseases. Hypochondriac.
And sorry for my mistakes.. I don't use vocabulary, so could be some:)
 
I'm confused. When you write let me be silly again and continue on about these "cases" are you still being silly or are you being serious? If serious please provide links to these cases. It would be a shame if others were to be mislead by your paranoia.
 
Couldn't paste the link so just copied post of one person:
"This is not so much a reply as joining your request for information. My father died in 1977 of ALS, his brother (my uncle) in 1975, and now this year my aunt (my father's sister) has been diagnosed with ALS. I, too, wonder about my chances and the chances of my children inheriting the gene for this disease. I have corresponded with Mara Gaudette, a genetic counselor at Northestern University in Chicago. One interesting point she made in our family's case is that we have not seen the gene passed from one generation to the other. All cases so far have been within the one generation and from the one set of parents. There were no cases in the previous generation that we know of. So time will tell whether the gene even passes to the next generation. I am the oldest of that next set of children, but my uncle died at age 58, my father at age 61, and my aunt is 67. That was interesting and rather calming to me that there was the possibility, at least, that the gene would not pass to me, even though familial ALS normally does."
 
The problem with the unidentified text you have quoted is that there is no "gene for ALS". It was obviously written by someone who did not have medical training, and was interpreting the observations of a researcher who knew perfectly well that there is no "gene for ALS". The current state of medical knowledge can be found at:

Genetic Testing for ALS - The ALS Association

and there is nothing in it to support your bizarre claims. I suspect you knew that anyway which is why you are quoting an unidentified person with no specialist knowledge of the subject rather than expert opinion...
 
Have gone to Modland, presumably because I gave the link to the ALS association web page on the genetics of ALS. It will turn up in due course, but in the meantime I will simply note that it does not support your bizarre claims.
 
Insomnia, your English is fine.
Your science is terrible.
Go away now. You don't have ALS. For another week or two, neither does your mother.
Come back if your mom's EMG confirms ALS.
Then we'll all be happy to help you help your mother.
 
My mom died of colon cancer 15 years ago and also had breast cancer prior to it. I get screenings as recommended by my physician but I dont' live my life in fear. We always thought my dad's heart would be what would get him since he has a enormous family history of cardiac problems. But, he has ALS instead. You just got to go out and live your life and don't worry about the what if's. Plus, you need to spend your time and energy on your mother right now instead of worrying so much about yourself.
 
Kim, cancer can be find in begining stages and cured... Is always hope and many sucssesfull cases. Its also bad disease but its different..
Mom is not at home these weeks, so why I spend so much time in all this.. When she will be home I wont have time to think about me.. But still.. How stupid I wouldn't seem I am very scared.
I won't come untill test results will be known. Best wishes to you)
 
Insomnia, we are simply trying to calm your fears. By all means, stay for comfort while you wait to see what your moms diagnosis ends up being. That's why we're here, but, really, there is simply no good reason to believe its not sporadic. If you're really that concerned, ask for the test for the gene mutation. I understand it's quite expensive. I read your article, still only 10% is genetic. That's a low percentage. Especially when you take into account that only 2 in every 100 thousand develop it in the first place.

Make an appt with a genetic counselor if your mother has ALS since no one here will convince you otherwise.

I can find articles that say people have been abducted by aliens. Don't believe everything you read.
 
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When soneone disagrees with me I sa, "But I read it on the Internet, and the Internet is always right!'
 
Ok insomnia...this is the way I see it. My husband has als. We don't know who his father is...much less any history. I have three sons. My advice to them is ....live your life. Don't NOT do something you want to do because you MIGHT (unlikely) get als. You might get hit by a bus for all we know. This is the only life you have. If you do get als there is nothing you can do about it so why worry about it. Your life will be a mixture of the cards you are dealt and the way you handle them. Right now its all about your mom. Stop worrying about yourself and go stand by your mom.
 
Wondering if Insomnia and Concernedyoung Female are the same person? They both go on and on and on. But, don't listen to any suggestion etc. I think they are both messing with us.
 
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