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pldo

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I have some knowlege of that. . . Just dont mention sex . . .
 

screwedagain

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Leslie, thanks for the info.

Right hand and arm is on the fritz again today. I tried pumping gas with it yesterday, and it hasn't worked right since. I've also tripped over my right foot a couple of times today. 6 days until I see the ALS specialist, or what someone on here accurately described as feeling like going to see the grim reaper.

No progress on the Puritans, either.
 

Peg B

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lost the thread

Hi Jeff,

You asked me a question but I lost the thread. I copied and pasted the answer here as the other one seems gone. Anyway I hope the information is helpful. Really best wishes on seeing the neuro. Please let us know.

MMN and AlS in many ways, are the same. My blood work shows no "autoamune" and I have one borderline conduction block. (clear DX of MMN calls for two conduction blocks.) MMN has treatment for the symtoms (IVIG) but no cure and the underlying disease progresses on. As far as ALS I have no upper motor neuron symptoms at this time. One internet site said that sometimes "the upper neuron ...(issues) don't show up until autopsy." (that gave me pause) I had abnormal EMG in three limbs. I am currently DX with either "Atypical ALS" or MMN. I am grateful it looks more like MMN as I am not any worse and I now can move my baby finger - atrophy right hand. Whatever I have is very slow so the best I can do is do the best I can do. My only fear is to live 10, 20 or less years worrying instead of living. That would embarass me a lot.

Also we told our kids 25 and 28 right away (24 hours). We believe in "the best news is no news" so our kids and sibs can trust that everything in OK unless we tell them different. That way none of us have to worry.

And about that paper... I always thought Salem Mass. to be an excellent theme . Best luck on getting that done!

My prayers are with you, Peg
 
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