CoachMeg
Distinguished member
- Joined
- Mar 4, 2011
- Messages
- 209
- Reason
- Loved one DX
- Diagnosis
- 02/2011
- Country
- US
- State
- CA
- City
- Roseville
Last night I had the opportunity to speak at a local high school. They have an annual concert titled Music for Hope that raises money for ALS and the American Cancer Society. It started after one of the band parents was diagnosed with ALS.
It felt good to advocate and to thank everyone for their donations. Also, to share the good things and caring hearts of my local ALS Association. With a little more practice, I might be good at the whole public speaking thing. I can handle 100 rowdy teenagers no problem, but tend to lose my mind in a quiet room of adults.
I am sharing this because I believe, now, that being a CALS will not end when my husband passes away. I will always be a caregiver. My role will change in that I will make it my mission to advocate for the research and continued support of all people affected by ALS. But also as a CALS, I will work to help and support other CALS.
Ok, so maybe a little rambling. But, I think that last night may have been the start of something good. And I hate to give credit to ALS for that. But if something good can come of our pain and suffering, than my husband's death will not be in vain.
Thank you all. For every positive note and cyber hug, for the support and the love. I can't imagine going through this alone.
Love and light
Meg
It felt good to advocate and to thank everyone for their donations. Also, to share the good things and caring hearts of my local ALS Association. With a little more practice, I might be good at the whole public speaking thing. I can handle 100 rowdy teenagers no problem, but tend to lose my mind in a quiet room of adults.
I am sharing this because I believe, now, that being a CALS will not end when my husband passes away. I will always be a caregiver. My role will change in that I will make it my mission to advocate for the research and continued support of all people affected by ALS. But also as a CALS, I will work to help and support other CALS.
Ok, so maybe a little rambling. But, I think that last night may have been the start of something good. And I hate to give credit to ALS for that. But if something good can come of our pain and suffering, than my husband's death will not be in vain.
Thank you all. For every positive note and cyber hug, for the support and the love. I can't imagine going through this alone.
Love and light
Meg