Robertblanchard
New member
- Joined
- Oct 8, 2019
- Messages
- 2
- Reason
- CALS
- Diagnosis
- 04/2019
- Country
- US
- State
- AZ
- City
- Gilbert
Hello. This is my first post.
My wife was diagnosed with ALS last April. Her neurologist said most patients live 3-5 years.
She had her three month pulmonary function test yesterday at Barrows in Phoenix.
Her FVC went from 100% to 81%.
Her MIP stayed-35.
The new neurologist at Barrows said these results change her prognosis to less than 3-5 years. She does not want bipap for now and she will never get a trach. She is having the signs of increased carbon dioxide in her system.
Can someone please educate me on what the forced vital capacity and maximum inspiratory pressure numbers have to get to for when my wife gets to go to heaven? She is unhappy with her quality of life and just wants to go home.
My wife was diagnosed with ALS last April. Her neurologist said most patients live 3-5 years.
She had her three month pulmonary function test yesterday at Barrows in Phoenix.
Her FVC went from 100% to 81%.
Her MIP stayed-35.
The new neurologist at Barrows said these results change her prognosis to less than 3-5 years. She does not want bipap for now and she will never get a trach. She is having the signs of increased carbon dioxide in her system.
Can someone please educate me on what the forced vital capacity and maximum inspiratory pressure numbers have to get to for when my wife gets to go to heaven? She is unhappy with her quality of life and just wants to go home.