- Oct 5, 2014
- New York
Want to second Laurie's excellent suggestion to switch providers if that is possible. Not sure if it's appropriate to name names (of providers, clinics) on this forum, but will assume so. Please correct me if I am wrong and I will avoid in the future! Since Manhattanite is in this neck of the woods, will mention that we went for a consult at the ALS Clinic at Columbia, and the quality of the interaction with the doc (Neil Schneider, the director) and NP who saw us was superior by leaps and bounds to our current doc/clinic. There are (uninteresting and complicated) reasons we are stuck with our current lackluster situation... Also, since we only visited that once, perhaps we just got lucky and my rosy assessment is not characteristic of their care in general. But it was the first time I felt like the doctor really listened, welcomed and responded to questions instead of being annoyed by them, etc. So may be worth further investigation.