stanlek1
New member
- Joined
- May 11, 2011
- Messages
- 6
- Reason
- Learn about ALS
- Diagnosis
- 04/2011
- Country
- US
- State
- WV
- City
- fisher
Rose,
I am in West Virginia, and recently was told by Doctors at Univ. of VA that I may have ALS. Now, they are calling it pseduo bulbar palsy.
I have been doing tons of research, and I haven't seen anything that says the onset is sudden. I was absolutely fine in October of 2010. Got very sick with upper respiratory and sinus infections. When I got better, my speech was affected. dysarthria, dyspahsia.
I have been back and forth to UVA several times, speech and pulmonary evals, and have a follow up appt. on May 23rd with Dr. at neurology clinic.
So, Not sure if I have ALS or not, but sure could use some support. I am a teacher, and losing speech is a horror show. I am still working, but not surehow long.
Thanks for ANY help!
I am in West Virginia, and recently was told by Doctors at Univ. of VA that I may have ALS. Now, they are calling it pseduo bulbar palsy.
I have been doing tons of research, and I haven't seen anything that says the onset is sudden. I was absolutely fine in October of 2010. Got very sick with upper respiratory and sinus infections. When I got better, my speech was affected. dysarthria, dyspahsia.
I have been back and forth to UVA several times, speech and pulmonary evals, and have a follow up appt. on May 23rd with Dr. at neurology clinic.
So, Not sure if I have ALS or not, but sure could use some support. I am a teacher, and losing speech is a horror show. I am still working, but not surehow long.
Thanks for ANY help!