Nighthawk
Senior member
- Joined
- Jan 17, 2013
- Messages
- 833
- Reason
- PALS
- Diagnosis
- 12/2011
- Country
- US
- State
- Maryland
- City
- Anne Arundel Co
Updated list of PALS who underwent non-ALS related procedures that needed anesthesia and/or sedation and Propofol was the anesthetic used on them.
They reported some improvements on their ALS symptoms and here is the updated list of these PALS (some of them are not members of these Forums but ALS-TDI Forums):
Best regards,
They reported some improvements on their ALS symptoms and here is the updated list of these PALS (some of them are not members of these Forums but ALS-TDI Forums):
Propofol Testimonials (revised list)
Date: July 25, 2013
We now have more than 12 ALS patients who have reported significant improvements after undergoing anesthesia.
Patient: Cypress
Improvements: increased dexterity, better speech and swallowing
Dose: 800 mg, 1200 mg
When noticed: same day
Duration: noticeable regress after day 9
Note: Major gains from 800 mg of Propofol + sevoflurane. Minor gains from 1200 mg propofol
Patient: Jason
Improvements: normal pft and emg after, increased right arm/shoulder strength, better swallowing with no choking
Dose: 150mg initially then small incremental doses after.
When noticed: same day, right after the procedure
Duration: about 1 month
Note: Jason received 400 mg of propofol during a second procedure on June 26 and, a few hours later, reported stronger improvements than he experienced the first time.
Patient: GusGargoyle
Improvements: complete remission of symptoms
Dose: 1140 mg
When noticed: 1 day after
Duration: about 2 weeks
Patient: lochnerd
Improvements: better speech and swallowing after 2 procedures
Dose: standard sedation dose
When noticed: about 2 days after
Duration: about 1 week
Patient: ichisan's wife
Improvements: spectacular improvements on 3 occasions, complete remission once
Dose: approximately ?, 1200, 1100 mg
When noticed: next day
Duration: from a few days to 2 weeks
Note: First anesthetic may have been sevoflurane, dose unknown
Patient: hjlindley
Improvements: improved neurological exams after spine surgery, improved walking
Dose: unknown
When noticed: unknown
Duration: unknown
Note: type of anesthetic is not yet known
Patient: laluzdelaman's PALS
Improvements: experienced a steadying of his gait while walking up and downstairs
Dose: 200 mg
When noticed: unknown
Duration: unknown
Patient: Lefteris's wife
Improvements: slight improvements in all areas
Dose: 200 mg
When noticed: unknown
Duration: unknown
Patient: FightingAttorney10
Improvements: significant improvements in lungs and right side of body
Dose: 400 mg
When noticed: same day
Duration: unknown
This list is not fully up to date. Please correct any mistake above and/or add more data as needed. Also, let us know if you noticed improvements after receiving a different type of anesthetic such as sevoflurane, isoflurane, halothane, etc.
Best regards,