youngf
New member
- Joined
- May 26, 2021
- Messages
- 2
- Reason
- Learn about ALS
- Diagnosis
- 05/2021
- Country
- SK
- City
- Bratislava
Hello all,
thank you for the opportunity to post here.
I am 35yo male. It started with noticing that fingers "wouldn't listen" when typing on the computer, March/April 2021. At the same time, widespread fasciculations, shortly after shortness of breath at night, and now weakness in right leg for about a month, getting more and more noticeable, I am starting to limp. I decided to visit a doctor in May, and got referred to a neurologist straight away. I had blood work done, the results showed nothing significant except elevated herpes zoster antibodies. I was seen by 2 neurologist in May, one did a clinical exam, the other did EMG (3 limbs). The EMG report mentions fibrillation potentials, "characteristically sounding" MUPs, mostly in the left deltoit. The fibrillations disappeared when the needle was moved, and it was noted that there were also normal MUPs. The nerve conduction exam was normal. The conclusion of the EMG report mentions "unspecific findings", suspects myogenic lession, and recommends to repeat EMG in 3 months. The neurologist also sent me for further blood work, thyroid, minerals, etc. which all came negative.
I am also noticing "spasms" or kind of shocks where part of my body jerks, be it shoulder, leg, back, and also chin. I sometimes wake up and am unable to move my chin at first, but can move it after a short while. A few nights ago, I felt like it got more difficult to breath, the chest became "heavier". Every day seems like my legs get weaker sooner - it used to be that I felt weak in the afternoon, now basically whole day.
The neurologists who performed EMG also asked about troubles swallowing, chewing during EMG - I reported no problems with that at that time, and is still fine. The other neurologist gave me a diagnoses of tetanus, which I don't buy, since tetanus is not supposed to be progressive and constant, right?
I have to say I am quite stressed because from what I read so far, the arrows point in an ugly direction. I am blessed with 3 small kids under 5, who give me so much joy and love. So far I haven't really stumbled or fell or dropped anything unexpectedly, but I feel like I have to be careful, as it feels like my legs are made of straw. Could this be all happening so fast? I hear people saying things progress over months or years, and here I am, getting significantly weaker in a course of maybe 4-5 weeks.
Btw. I am going to see another neurologist on Tuesday, to get another opinion and to hear what they think about the EMG findings.
Sorry for the long post.
thank you for the opportunity to post here.
I am 35yo male. It started with noticing that fingers "wouldn't listen" when typing on the computer, March/April 2021. At the same time, widespread fasciculations, shortly after shortness of breath at night, and now weakness in right leg for about a month, getting more and more noticeable, I am starting to limp. I decided to visit a doctor in May, and got referred to a neurologist straight away. I had blood work done, the results showed nothing significant except elevated herpes zoster antibodies. I was seen by 2 neurologist in May, one did a clinical exam, the other did EMG (3 limbs). The EMG report mentions fibrillation potentials, "characteristically sounding" MUPs, mostly in the left deltoit. The fibrillations disappeared when the needle was moved, and it was noted that there were also normal MUPs. The nerve conduction exam was normal. The conclusion of the EMG report mentions "unspecific findings", suspects myogenic lession, and recommends to repeat EMG in 3 months. The neurologist also sent me for further blood work, thyroid, minerals, etc. which all came negative.
I am also noticing "spasms" or kind of shocks where part of my body jerks, be it shoulder, leg, back, and also chin. I sometimes wake up and am unable to move my chin at first, but can move it after a short while. A few nights ago, I felt like it got more difficult to breath, the chest became "heavier". Every day seems like my legs get weaker sooner - it used to be that I felt weak in the afternoon, now basically whole day.
The neurologists who performed EMG also asked about troubles swallowing, chewing during EMG - I reported no problems with that at that time, and is still fine. The other neurologist gave me a diagnoses of tetanus, which I don't buy, since tetanus is not supposed to be progressive and constant, right?
I have to say I am quite stressed because from what I read so far, the arrows point in an ugly direction. I am blessed with 3 small kids under 5, who give me so much joy and love. So far I haven't really stumbled or fell or dropped anything unexpectedly, but I feel like I have to be careful, as it feels like my legs are made of straw. Could this be all happening so fast? I hear people saying things progress over months or years, and here I am, getting significantly weaker in a course of maybe 4-5 weeks.
Btw. I am going to see another neurologist on Tuesday, to get another opinion and to hear what they think about the EMG findings.
Sorry for the long post.