sefarion
New member
- Joined
- Jun 29, 2020
- Messages
- 9
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- CZ
- State
- CZ
- City
- Prague
Once again hello,
Thanks for your reply and kind words but in my country, we have specialized centres which are focused directly on treating MS, so if they thought that I have MS they would send me there (my neurologists actually discussed my symptoms and test results with MS clinics before they decided to send me to a neuromuscular specialist).
So MS is "sadly" off from the table.
I also googled the name of my doctor in the next hospital and he is a big name in diagnosis MND in my country.
Meanwhile, my left hand is still getting worse and worse. (but all limbs and neck kinda slowly follow it) I can't carry anything heavy in the left hand and when I play on piano my fingers get "stiff" and "freeze" so I can't play properly. Yesterday my friend visited me and she was kinda scared how my hands look (she weight like 55kg in total and she has more bulky hands than me 110kg heavy guy).
I am still waiting for mid of September and my hospitalization but if I compare my problems from April till now, everything keeps getting slowly worse which make me sad and powerless.
I have to admit I have googled a lot about all possible options and I also read a lot of scientific articles about MND and it sucks.... I just can't persuade myself anymore that it could be something else when I take all my results in the account.
Sorry for bothering you but I needed to talk about it and I don't have anyone else. I am living alone and this is not topic for friends and I definitely can't put more pressure on my parents, they already freak about it a lot. (After my cancer fight they are rly sensitive about my health).
So thanks a lot for reading!
I am going to inform you in September about the final diagnosis
Have a nice day!
Tomas
Thanks for your reply and kind words but in my country, we have specialized centres which are focused directly on treating MS, so if they thought that I have MS they would send me there (my neurologists actually discussed my symptoms and test results with MS clinics before they decided to send me to a neuromuscular specialist).
So MS is "sadly" off from the table.
I also googled the name of my doctor in the next hospital and he is a big name in diagnosis MND in my country.
Meanwhile, my left hand is still getting worse and worse. (but all limbs and neck kinda slowly follow it) I can't carry anything heavy in the left hand and when I play on piano my fingers get "stiff" and "freeze" so I can't play properly. Yesterday my friend visited me and she was kinda scared how my hands look (she weight like 55kg in total and she has more bulky hands than me 110kg heavy guy).
I am still waiting for mid of September and my hospitalization but if I compare my problems from April till now, everything keeps getting slowly worse which make me sad and powerless.
I have to admit I have googled a lot about all possible options and I also read a lot of scientific articles about MND and it sucks.... I just can't persuade myself anymore that it could be something else when I take all my results in the account.
Sorry for bothering you but I needed to talk about it and I don't have anyone else. I am living alone and this is not topic for friends and I definitely can't put more pressure on my parents, they already freak about it a lot. (After my cancer fight they are rly sensitive about my health).
So thanks a lot for reading!
I am going to inform you in September about the final diagnosis
Have a nice day!
Tomas