Amandar8585
Member
- Joined
- Jun 25, 2020
- Messages
- 16
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- UK
- State
- UK
- City
- Manchester
Sorry to post again, I couldn’t figure out to post on my first original thread.
So a little update, i had nerve conduction and emg studies on 12th November and I’m awaiting the results, not sure how long they take. The physiologist stated that there were excitable nerves and he wanted to assess the results before sending them to my neurologist.
I’m concerned about my progression, with swallowing, mainly dry bulky foods but on occasion just swallowing at all. Sometimes food just sits in the back of my throat and I’m telling myself to swallow but it won’t happen. In order to eat i have to fully mush the food in the front of my mouth, that still doesn’t always help. I can start a yawn,but cannot satisfyingly finish one. I can’t sneeze either, again i feel the initial tickle in my nose, and then nothing. I’ve also noted my tongue is significantly smaller, it sits a lot lower in my mouth as if there’s a void below my tongue.
My breathing has become worse, mainly after a day of cleaning around the house as I’m furloughed from work, if i talk too much my voice becomes soft, weak and occasionally a whisper and then i suffer shortness of breath. I did have covid but wasn’t poorly with it but my dr has put my shortness of breath down to that and given me an inhaler which doesn’t seem to be doing anything and i feel the weakness is from nose, throat and chest. I have days without severe shortness of breath., that’s when I’m having regular good sleep. Shortness of breath is worse if i have only managed 6 hours sleep. The shortness of breath feels like a pressure in my chest and tightness in my throat and my nose feels congested at the same time.
Nothing has failed as such, but the breathing issues are terrifying. Is this common progression?
So a little update, i had nerve conduction and emg studies on 12th November and I’m awaiting the results, not sure how long they take. The physiologist stated that there were excitable nerves and he wanted to assess the results before sending them to my neurologist.
I’m concerned about my progression, with swallowing, mainly dry bulky foods but on occasion just swallowing at all. Sometimes food just sits in the back of my throat and I’m telling myself to swallow but it won’t happen. In order to eat i have to fully mush the food in the front of my mouth, that still doesn’t always help. I can start a yawn,but cannot satisfyingly finish one. I can’t sneeze either, again i feel the initial tickle in my nose, and then nothing. I’ve also noted my tongue is significantly smaller, it sits a lot lower in my mouth as if there’s a void below my tongue.
My breathing has become worse, mainly after a day of cleaning around the house as I’m furloughed from work, if i talk too much my voice becomes soft, weak and occasionally a whisper and then i suffer shortness of breath. I did have covid but wasn’t poorly with it but my dr has put my shortness of breath down to that and given me an inhaler which doesn’t seem to be doing anything and i feel the weakness is from nose, throat and chest. I have days without severe shortness of breath., that’s when I’m having regular good sleep. Shortness of breath is worse if i have only managed 6 hours sleep. The shortness of breath feels like a pressure in my chest and tightness in my throat and my nose feels congested at the same time.
Nothing has failed as such, but the breathing issues are terrifying. Is this common progression?