lisa g
Senior member
- Joined
- Apr 17, 2019
- Messages
- 700
- Reason
- PALS
- Diagnosis
- 04/2019
- Country
- US
- State
- FL
- City
- Fort Pierce
I had 4 EMG's☹. First one in 2013 due to swallowing issues and loss of taste. I had a bad motorcycle accident in 2007. That was normal. Than in 2019 had one that said definite ALS. Went for a second opinion had another EMG that was inconclusive so neuro sent me to her partner for another EMG, that showed abnormalities in one area so from there I was sent to the head neuro at Cleveland Clinic in Weston. Was dreading the thought of another EMG. That neuro said another EMG wasn't necessary after reading all previous notes, test results and doing a through exam she said UMN.
Since then I switched to UA Miami for clinic. I was seen by Dr. Benatar who confirmed ALS UMN dominant. Didn't show LMN at that point. I go back to see him in August and wouldn't be surprised if LMN is involved now. Feeling spasms in arms and every now and then they lock up at the elbows when turned a certain way.
It's been no picnic and took awhile to finally get diagnosed. That was over 2 years ago and am now strapping in for the unpredictable rollercoaster ride.
Since then I switched to UA Miami for clinic. I was seen by Dr. Benatar who confirmed ALS UMN dominant. Didn't show LMN at that point. I go back to see him in August and wouldn't be surprised if LMN is involved now. Feeling spasms in arms and every now and then they lock up at the elbows when turned a certain way.
It's been no picnic and took awhile to finally get diagnosed. That was over 2 years ago and am now strapping in for the unpredictable rollercoaster ride.