Idaho2790
Distinguished member
- Joined
- Dec 22, 2017
- Messages
- 150
- Reason
- PALS
- Diagnosis
- 01/2018
- Country
- US
- State
- Idaho
- City
- Leadore
I am a 72 year old woman, diagnosed yesterday with PBP at UCSF. Was told that because my Emg only showed a problem with my tongue, speech and swallowing, i might have two to five years before losing muscle in my limbs. I understand might have a need for peg or other items to communicate. When I check the internet it looks like this is a disease that has a short term prognosis. Any help with our concerns?