gunnyb
New member
- Joined
- Nov 13, 2022
- Messages
- 4
- Reason
- PALS
- Diagnosis
- 08/2011
- Country
- US
- State
- TX
- City
- San Antonio
I was dx with ALS in 2011 while living in Southern California. I was accepted into the ALS clinic at the VAMC Loma Linda and seen quarterly for years.
As life evolved, my wife retired and became my caregiver, we moved to San Antonio, Tx to be closer to family and friends and the VA.
I had been on a drug called Riluzole for 10+ years and one of the many things it did was stop my tremors dead in their tracks.
The VA neurologist that I'm seeing believes that I don't have ALS, but nerve problems in my leg and stopped the Riluzole. The tremors have now returned with a vengeance. They have severely affected my physical therapy. He prescribed some other drug that does nothing.
I have requested a second opinion outside the VA but been denied because it is against VA policy.
Any and all assistance would be helpful in getting this VAMC on track helping Vets with ALS.
TY
Retired Marine Gunny
As life evolved, my wife retired and became my caregiver, we moved to San Antonio, Tx to be closer to family and friends and the VA.
I had been on a drug called Riluzole for 10+ years and one of the many things it did was stop my tremors dead in their tracks.
The VA neurologist that I'm seeing believes that I don't have ALS, but nerve problems in my leg and stopped the Riluzole. The tremors have now returned with a vengeance. They have severely affected my physical therapy. He prescribed some other drug that does nothing.
I have requested a second opinion outside the VA but been denied because it is against VA policy.
Any and all assistance would be helpful in getting this VAMC on track helping Vets with ALS.
TY
Retired Marine Gunny