Wiggin02
New member
- Joined
- Sep 8, 2016
- Messages
- 4
- Reason
- Other
- Country
- US
- State
- Oklahoma
- City
- Choctaw
Hi all,
I last posted here in September of 2016. https://www.alsforums.com/forum/do-i-have-als-als/35890-24-years-old-progressing-symptoms.html
I got a lot of feedback for my plethora of symptoms at that time which helped me calm down and assume something else was going on. I did eventually see a GP who referred me to a general neurologist, but I was stupid and wasn't adamant enough about making an appointment.
Unfortunately, my symptoms only got worse. Over the past few months I had noticed that my left leg/foot kept getting a little heavier and heavier, my entire left side getting generally weaker and that my tremors and fasciculations had gotten worse. I honestly had started to assume that I had something like Parkinson's disease because of the resting jaw tremor I have going on and because the pain in my left calf had gotten worse. Everything seemed to be going pretty slowly other than the increase in tremors. I would sometimes wake abruptly and feel my entire body tremor. I thought even if I had something wrong, that it was going really slowly and only affecting my left leg for the most part.
That all changed about a little over a week ago when I went for a run and a light workout at the gym. I did a light leg workout and ran about a mile before having to stop. I could barely pick up my left foot and for the first time my right leg was heavy. I've noticed that the fasciculations have also increased in my right leg along with the weakness. I walked home from the gym and cried. I haven't noticed the pain on my right side like I feel on my left -- not cramping, more of a deep, burning pain that waxes and wanes. I still have these weird sensations when I say certain words, those with "sh" or "juh" sounds don't come out right. I haven't slept well in a week. I can still walk relatively well, but I tire more easily than a couple weeks before. Too scared to do much of any physical activity.
One question: does the beginning of calf atrophy just look like the calf is smaller, or does the calf fail in little segments starting from the bottom? I have this little ridge/wedge of muscle right below my left calf.
I finally have an appointment with a neuromuscular neurologist on Thursday of this week. (Thank goodness for a cancellation or else I'd be waiting another month) I have only been seen by a couple of GPs up to this point. No real testing other than a clean blood workup. Hoping for the best, but it's hard to feel optimistic. I'll update after the appointment.
:/
I last posted here in September of 2016. https://www.alsforums.com/forum/do-i-have-als-als/35890-24-years-old-progressing-symptoms.html
I got a lot of feedback for my plethora of symptoms at that time which helped me calm down and assume something else was going on. I did eventually see a GP who referred me to a general neurologist, but I was stupid and wasn't adamant enough about making an appointment.
Unfortunately, my symptoms only got worse. Over the past few months I had noticed that my left leg/foot kept getting a little heavier and heavier, my entire left side getting generally weaker and that my tremors and fasciculations had gotten worse. I honestly had started to assume that I had something like Parkinson's disease because of the resting jaw tremor I have going on and because the pain in my left calf had gotten worse. Everything seemed to be going pretty slowly other than the increase in tremors. I would sometimes wake abruptly and feel my entire body tremor. I thought even if I had something wrong, that it was going really slowly and only affecting my left leg for the most part.
That all changed about a little over a week ago when I went for a run and a light workout at the gym. I did a light leg workout and ran about a mile before having to stop. I could barely pick up my left foot and for the first time my right leg was heavy. I've noticed that the fasciculations have also increased in my right leg along with the weakness. I walked home from the gym and cried. I haven't noticed the pain on my right side like I feel on my left -- not cramping, more of a deep, burning pain that waxes and wanes. I still have these weird sensations when I say certain words, those with "sh" or "juh" sounds don't come out right. I haven't slept well in a week. I can still walk relatively well, but I tire more easily than a couple weeks before. Too scared to do much of any physical activity.
One question: does the beginning of calf atrophy just look like the calf is smaller, or does the calf fail in little segments starting from the bottom? I have this little ridge/wedge of muscle right below my left calf.
I finally have an appointment with a neuromuscular neurologist on Thursday of this week. (Thank goodness for a cancellation or else I'd be waiting another month) I have only been seen by a couple of GPs up to this point. No real testing other than a clean blood workup. Hoping for the best, but it's hard to feel optimistic. I'll update after the appointment.
:/
