PREVENT ALS New carrier study

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Nikki J

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Joined
Mar 22, 2012
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17,248
Reason
PALS
Diagnosis
04/2014
Country
US
State
MA
City
Boston
This is an arm of ALL ALS and will eventually have 35 sites. If you are in DIALS or Columbia families they will transition you and if you were traveling there may well be a closer site

You don’t have to know your gene status if you are a close relative of a documented gene carrier affected person or a close relative of an affected person in a family with a strong FALS pattern. They will test you but you don’t have to learn results

Planned sites
IMG_3502.png
 
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