jab1023
Member
- Joined
- Jul 27, 2018
- Messages
- 10
- Reason
- Learn about ALS
- Country
- US
- State
- Ohio
- City
- Dublin
Hello,
My story begins in January or February of this year. My left foot would fall asleep very quickly and that leg was numb. I'd had a previous dvt and high d-dimer, but no clot was found in that leg on Feb 1.
I began to have long periods where my heart would race and pound hard for no reason, and this caused dizziness. ER trips, cardiologist said nothing major wrong with my heart.
The numbness in the left leg kind of stayed around. I started to get "wet" feeling tingles all over on St Patrick's Day. I started herniating discs in my back and neck even though I wasn't being very active. MRIs in May found an "incidental" arachnoid cyst on my brain, but nothing else concerning. Bloods are pretty normal, always.
I had a normal emg on my worst side April25.
I'm exhausted all the time even after several hours of sleep. I had to get a sleeping pill RX after not sleeping for four nights straight a month ago.
In the last month, I've had some numbness in both legs, groin, and left foot (left leg is worse, too.) Was concerned about Cauda Equina, ER did MRIs and said no, it wasn't.
My stomach and lower back tingle/prickle. Diarrhea for a month. Throat feels like there is something stuck in it. The sides of the front of my neck pulsate. My torso and neck kind of twitch around. I asked a neurologist if it was ALS and he said no, because ALS isn't sensory and my strength is good. My hands shake.
It's been a nightmare. I'm mentally hazy and never want to get out of bed.
I saw a neurosurgeon last week who said I didn't need surgery, but I had a positive, Babinski, Hoffman, and something else. He said I show signs of cord compression but my head-down MRIs were essentially clean.
The symptoms that have me worried about ALS are slower walking, both my calf muscles twitching on their own, and difficulty swallowing along with the right side of my neck twitching on its own.
It’s pretty scary since my neuro said ALS isn’t ruled out yet.
My story begins in January or February of this year. My left foot would fall asleep very quickly and that leg was numb. I'd had a previous dvt and high d-dimer, but no clot was found in that leg on Feb 1.
I began to have long periods where my heart would race and pound hard for no reason, and this caused dizziness. ER trips, cardiologist said nothing major wrong with my heart.
The numbness in the left leg kind of stayed around. I started to get "wet" feeling tingles all over on St Patrick's Day. I started herniating discs in my back and neck even though I wasn't being very active. MRIs in May found an "incidental" arachnoid cyst on my brain, but nothing else concerning. Bloods are pretty normal, always.
I had a normal emg on my worst side April25.
I'm exhausted all the time even after several hours of sleep. I had to get a sleeping pill RX after not sleeping for four nights straight a month ago.
In the last month, I've had some numbness in both legs, groin, and left foot (left leg is worse, too.) Was concerned about Cauda Equina, ER did MRIs and said no, it wasn't.
My stomach and lower back tingle/prickle. Diarrhea for a month. Throat feels like there is something stuck in it. The sides of the front of my neck pulsate. My torso and neck kind of twitch around. I asked a neurologist if it was ALS and he said no, because ALS isn't sensory and my strength is good. My hands shake.
It's been a nightmare. I'm mentally hazy and never want to get out of bed.
I saw a neurosurgeon last week who said I didn't need surgery, but I had a positive, Babinski, Hoffman, and something else. He said I show signs of cord compression but my head-down MRIs were essentially clean.
The symptoms that have me worried about ALS are slower walking, both my calf muscles twitching on their own, and difficulty swallowing along with the right side of my neck twitching on its own.
It’s pretty scary since my neuro said ALS isn’t ruled out yet.