Nikki J
Moderator
- Joined
- Mar 22, 2012
- Messages
- 16,475
- Reason
- PALS
- Diagnosis
- 04/2014
- Country
- US
- State
- MA
- City
- Boston
They are not yet fully enrolled
Precision Medicine Program | ALS Therapy Development Institute
You have to travel in Boston and they do not pay for the trip or lodging. It is just a few hours visit. Medical history blood draw and skin biopsy. Every month you fill out the functional rating scale online, request online a phone call where you repeat 5 times a simple sentence and for 6 days a month wear activity sensors and 3 times you do arm and leg movements in a sequence that takes less than 20 minutes. you do these things at your convenience
What is in it for you? They sequence your genome and share results with you. They will eventually test various drugs against your cells and share results with you. It takes months for this to happen and who knows if they will find anything but it is very cool science. And Boston is a great place to visit!
So if you are physically and financially able to travel please consider
Precision Medicine Program | ALS Therapy Development Institute
You have to travel in Boston and they do not pay for the trip or lodging. It is just a few hours visit. Medical history blood draw and skin biopsy. Every month you fill out the functional rating scale online, request online a phone call where you repeat 5 times a simple sentence and for 6 days a month wear activity sensors and 3 times you do arm and leg movements in a sequence that takes less than 20 minutes. you do these things at your convenience
What is in it for you? They sequence your genome and share results with you. They will eventually test various drugs against your cells and share results with you. It takes months for this to happen and who knows if they will find anything but it is very cool science. And Boston is a great place to visit!
So if you are physically and financially able to travel please consider