Michael_67
Active member
- Joined
- Sep 1, 2019
- Messages
- 32
- Reason
- PALS
- Diagnosis
- 08/2019
- Country
- US
- State
- NY
- City
- New York City
Hi Everybody,
I wanted to ask if anyone has participated in ALSTDI’s Precision Medicine Program? Basically, you track your symptoms each day. It seems like it could be a lot of work and not quite sure of the value. I guess you get a sense of how fast you’re progressing? But do I really want to know that /be reminded of it on a daily basis? If any of you have any experience/thoughts about this, would love to hear them. Take good care my PALS!
I wanted to ask if anyone has participated in ALSTDI’s Precision Medicine Program? Basically, you track your symptoms each day. It seems like it could be a lot of work and not quite sure of the value. I guess you get a sense of how fast you’re progressing? But do I really want to know that /be reminded of it on a daily basis? If any of you have any experience/thoughts about this, would love to hear them. Take good care my PALS!