Power wheelchair?

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ATP = Assistive Technology Professional
DME = Durable Medical Equipment

Wheelchairs are a type of durable medical equipment. An example of a DME provider is NuMotion.

Steve
 
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Do you think advisable to buy a light weight portable electric wheelchair or will it be too short lived until need for heavy duty PWC?
 
That would entirely depend on progression
 
Most often, not. The torso positioning needs that usually go along with weaker legs aren't met well by a portable PWC that can't really tilt/recline. Even disassembled, they are also heavier/more awkward than most CALS can handle, which defeats the portability idea, and, of course, expensive.
 
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I’m a PALS and obtained a Jazzy Carbon lightweight folding power wheelchair free of charge from Team Gleason. The reason they provide these is to address that stage when PALS are still ambulatory, but not for long distances. I recently traveled to FL, and having the Jazzy Carbon really made getting around and enjoying the trip with my family possible. It only weighs 43 pounds, including the battery, so my wife is able to lift it into our RAV pretty easily. The Team Gleason website has an application form. After a brief interview, I received my chair in less than a week. God bless Steve Gleason!
 
God bless you!!!
 
Mike do you find it reasonably comfortable? And since it is one size fits all how do you think it would work for 5’4” female ? I am at that stage and have been pondering something like that
 
Assistive Technology Professionals work for Durable Medical Equipment companies like NuMotion or National Seating and Mobility. They should be the people fitting and ordering the PWC. I have a personally purchased 35lb carbon fibre chair for travel, a Permobil M3 for daily use and Braunability modified Toyota Sienna hybrid with Q-lock. That setup maximizes my ability to get out. The ALS Association has loan closets with various gear. Definitely try before you buy. Insurance won't pay for a travel chair. If it is safe for your condition that can be a great startling point.
 
ATPs / SMSs may work for hospitals and clinics, not only DMEs. They can also hold OT or PT credentials with an ATP on top.

You may see an SMS after someone's name (seating and mobility specialists, an added credential for some ATPs). PTs and OTs without RESNA certifications may play a key role or be rubber stamps. A clinician must sign off on orders for reimbursement to avoid "conflicts of interest" (eye roll).

It's important to look critically at the recommended chair brand/model and configuration before it's submitted to your plan, particularly if that person works at a DME vendor, because recommendations can be skewed by compensation/incentive considerations, even by the month or quarter. Also, accessories that PALS find important can be overlooked or accidentally omitted, and harder to get later. You can find a lot of information on line, including here, about pros and cons of chairs and features.

You have the right to work with any DME firm in-network with your plan (of course, if you pay cash, you can work with any DME at all), even if your clinic does not normally work with that provider. Clinic/DME relationships are not always based on merit.

It is not unusual to switch DMEs before an order is submitted, if you aren't a fit or question their recommendation. We did (going from a Quantum to a Permobil).

Switching DMEs after taking delivery is much more problematic because they make their money off the new chair order, not add-ons (unless major), maintenance, or battery replacements. And with short-staffing and dwindling reimbursement, few vendors can afford to spend significant time in low-margin activities.
 
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As others may have mentioned it takes some time to have the wheelchair built. My pwc was ordered in April and I hope to get it by the end of this month.
 
Hi Nikki,
I have just registered with this forum and saw a few of your comments.
Anyway, have just received a carbon foldable wheelchair and it’s fantastic. I am 5.6.. medium weight.
I would like to message you directly as I read your symptoms started in your ankle. Same as mine. I am not getting any advice from my neurologist only doom and gloom. She just wants to find more symptoms of ALS and has told me my progression is slower than most.
 
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I learned that Gleason will only provide the jazzy carbon fiber chair if you don't already have a full size power wheelchair. I do, but only recently started using it around the house and have no means to transport the big chair yet. I can still transfer from my manual wheelchair to the car seat but I don't know for how long. That's the trouble with this disease, nobody knows how you will progress so you don't know how long you will be able to use different types of mobility equipment. You might spend a lot of money on something just to use it a couple of months.
 
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