SyncOrSwym
Active member
- Joined
- Oct 7, 2016
- Messages
- 32
- Reason
- PALS
- Diagnosis
- 09/2016
- Country
- US
- State
- WA
- City
- Shelton
I think my body heard someone from Boston inviting people to a party -- and heard "potty" and decided to go with that. I spent probably close to 5 hours on the toilet Saturday, and then another couple of hours there Sunday. NOT fun! My rump was raw, and my legs were sore from trying to get up so often -- but my wife mostly had to help me up after a while 'cause my legs just gave out. (Getting up from the toilet has been more problematic in the last few days anyway.)
This is a feature of ALS I am NOT looking forward to for the next year or two (if it continues). I'm definitely back on prune juice (for 2 days now), and switching to a store laxative (forget which one) right away. Today it's much better, only two trips to the pot this morning, for maybe 20 minutes total. Yay! I am SO glad we decided some time back to get a toilet seat bidet, but after so many washes even the water jets were taking off skin.
Warning: gross(er) details ahead. See, my bowel muscles weren't strong enough to move the three-or-four-day backup more than a half-inch or so, before that became an insurmountable plug (I think). Cleaning off the plug immediately started the pump again -- for another half-inch or so. So I just couldn't get up! Every time I thought I was done, the next urge would start. Meanwhile my legs were going to sleep and my feet were getting even more swollen than they had been.
Well, enough grossness for one message. Apologies to all, but I had to tell someone, and you people got "lucky".
Regards,
Ed
This is a feature of ALS I am NOT looking forward to for the next year or two (if it continues). I'm definitely back on prune juice (for 2 days now), and switching to a store laxative (forget which one) right away. Today it's much better, only two trips to the pot this morning, for maybe 20 minutes total. Yay! I am SO glad we decided some time back to get a toilet seat bidet, but after so many washes even the water jets were taking off skin.
Warning: gross(er) details ahead. See, my bowel muscles weren't strong enough to move the three-or-four-day backup more than a half-inch or so, before that became an insurmountable plug (I think). Cleaning off the plug immediately started the pump again -- for another half-inch or so. So I just couldn't get up! Every time I thought I was done, the next urge would start. Meanwhile my legs were going to sleep and my feet were getting even more swollen than they had been.
Well, enough grossness for one message. Apologies to all, but I had to tell someone, and you people got "lucky".
Regards,
Ed