- Aug 21, 2015
- Learn about ALS
Hello, this is Royce. I have posted a few times on this site and wanted to post an update on my progress and also gets some clarification and thoughts. Atsugi has been very kind to answer my concerns in the past and I'm appreciative of that. I have had muscle twitching mainly in my right leg, calf, thigh, area between calf and ankle, and arch of foot. I do have twitching elsewhere but mainly in right leg. I also noticed my right leg thigh muscle and calf is much smaller than the left. In the stickies it is mentioned that atrophy can be an early sign, but some have said atrophy doesn't happen until the muscle has already been paralyzed. Can I get some clarification on that? I did have an emg and a nerve conduction test done only on the right leg and right arm by my neurologist. He said there is chronic nerve damage in my right thigh but not ongoing nerve damage. He had no explanation for why. He also said the emg showed no signs of als and said the emg points more towards cramping fascicullation syndrome. There was one muscle in the thigh he didn't test which is the small one attached to the knee called the vastus medialus which is the muscle that is smaller than the left leg. When I emailed him about it he said als would not affect one muscle. Even after the emg I'm still having concerns due to the muscle twitching worsening in the right leg and the appearance of atrophy or noticeable size difference. I have not experienced clinical weakness in that leg but definitely notice a weaker thigh muscle when trying to exercise or work it out. Unfortunately I've read so much on als diagnosis and symptoms, some being progressive and some being immediate I don't know whether to continue pursuing my concerns or not. Appreciate any thoughts and hope this post helps others in some way. Take care.