Hi, My girlfriend completed a registration on Monday, March 9th, and still has not received an email for her to confirm her registration. She has rapid onset bulbar ALS and really needs you guys! I don't want to post her name here. Her son had a similar issue and never got a response to his email that he sent to the site, so I am using the open forum to ask whom I can contact privately to see if I can get this resolved for her.
I cannot thank all of you enough for this site. Just yesterday I was looking for "voices" for her and used a thread I found here as my starting point. I would have been totally lost otherwise.