gers03
New member
- Joined
- Mar 17, 2014
- Messages
- 6
- Reason
- Loved one DX
- Country
- AUS
- State
- Victoria
- City
- Melbourne
Hello there, I have just joined this forum, my father 71, has just recently been diagnosed with MND, Its absolutely devasting for my family and myself.
I have a few questions regarding diagnosis and i am positive people within this forum would have the experience to answer them?
My father has experienced muscle twitching in both arms and across his chest since October 2013. His left hand is a little weak. He has told me that his leg is the same, however we cant be sure whether this is just symptoms because he was told of what happens when the disease progresses. He has had an MRI to see if it was the nerves were trapped by the neck muscles and this wasn't the case. He has also just had an EMG and a new specialist re-confirmed the diagnosis MND.
To date this all the tests and symptoms my father is showing. When he was diagnosed with MND he was only physically examined with no tests (I felt that this was strange, considering that this disease is very hard to diagnose) He is yet to undergo a breathing capacity test which will occur this week.
He shows no other symptoms and I wanted to know whether this could still be a misdiagnosis and could still possibly be BFS or PLS?
I have recommended that he also undergo a muscle biopsy to test for any other possible conditions. I just find weird that without any tests that were able to say definitively that he has MND. What are peoples thoughts around this?
I have a few questions regarding diagnosis and i am positive people within this forum would have the experience to answer them?
My father has experienced muscle twitching in both arms and across his chest since October 2013. His left hand is a little weak. He has told me that his leg is the same, however we cant be sure whether this is just symptoms because he was told of what happens when the disease progresses. He has had an MRI to see if it was the nerves were trapped by the neck muscles and this wasn't the case. He has also just had an EMG and a new specialist re-confirmed the diagnosis MND.
To date this all the tests and symptoms my father is showing. When he was diagnosed with MND he was only physically examined with no tests (I felt that this was strange, considering that this disease is very hard to diagnose) He is yet to undergo a breathing capacity test which will occur this week.
He shows no other symptoms and I wanted to know whether this could still be a misdiagnosis and could still possibly be BFS or PLS?
I have recommended that he also undergo a muscle biopsy to test for any other possible conditions. I just find weird that without any tests that were able to say definitively that he has MND. What are peoples thoughts around this?