Indenial6483
New member
- Joined
- Mar 31, 2021
- Messages
- 2
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- UK
Hello i just wondered if anyone had been misdiagnosed with ms before having the diagnosis changed to als?
My symptoms started exactly a year ago with an electric shock feeling down my spine and blurred vision and other sensroy symptoms, i was hospitalised had an mri and lumbar puncture and diagnosed with ms. Since then i have had onset of hand and leg weakness and all the sensory symptoms have faded, they have tried numerous doses of high powered steroids but nothing is helping the weakness. After all this about three months ago i woke up with a fasciculation in my left hand that has never stopped since, it is there continously 24/7 and another one has now started in my tounge again its constant. I spoke to the neurologist who said this is not common for ms and wants to do an emg. I dont really have any atrophy that is obvious maybe some dimples in the hand that arent present in the other. I have also started to have hypersalivation with my mouth just filling continously with saliva and when googling this it came up with a link to this site. Als had never crossed my mind untill i looked at this site and only really popped up when the neuro suggested the emg. The neuro is a top uk specialist in ms but didnt make the original diagnosis so my concern is he has just gone with what the original incompotent neuro did. I suppose im just wondering if anyone else has been in this position ? Thank you for your time.
My symptoms started exactly a year ago with an electric shock feeling down my spine and blurred vision and other sensroy symptoms, i was hospitalised had an mri and lumbar puncture and diagnosed with ms. Since then i have had onset of hand and leg weakness and all the sensory symptoms have faded, they have tried numerous doses of high powered steroids but nothing is helping the weakness. After all this about three months ago i woke up with a fasciculation in my left hand that has never stopped since, it is there continously 24/7 and another one has now started in my tounge again its constant. I spoke to the neurologist who said this is not common for ms and wants to do an emg. I dont really have any atrophy that is obvious maybe some dimples in the hand that arent present in the other. I have also started to have hypersalivation with my mouth just filling continously with saliva and when googling this it came up with a link to this site. Als had never crossed my mind untill i looked at this site and only really popped up when the neuro suggested the emg. The neuro is a top uk specialist in ms but didnt make the original diagnosis so my concern is he has just gone with what the original incompotent neuro did. I suppose im just wondering if anyone else has been in this position ? Thank you for your time.