chrislux
New member
- Joined
- Jan 21, 2022
- Messages
- 4
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- LU
Good morning to everyone,
I have read the sticky notes, however I still have some questions.
I'm male, 46 y.o and from Luxembourg, Europe.
My first question regards familial Als. Both, my grand mother and my father died of dementia. My grand mother at 89 (onset around 82) and my father at 84 (onset 82). I do not know which form of dementia it was, but based on my father's behaviour and rapid decline I suspect FTD. He also lost control of his right hand from one day to the other and soon after over his legs. Doctors suspected a stroke, but not sure about that.
My first question therefore is: Assuming both had FTD, would there be a chance of developing Fals at around 46 or would that be to early?
Now to my symptoms: I do not have any weakness. 2 weeks ago my thenar twitched for 3 days, that disappeared. After a couple of days the twitching reappeared in the sole of my right foot, to spread to my right limb, my left sole of my foot and occassionnally even my whole body. The twitching of the soles of my feet is permanent 24/7.
I know that you consider twitching not an issue per se, but I read that in familial ALS-onset could be by (whole body) twitching.
Assuming familial ALS, do you consider the twitching bothersome?
Thanks for your assistance!
Chris
I have read the sticky notes, however I still have some questions.
I'm male, 46 y.o and from Luxembourg, Europe.
My first question regards familial Als. Both, my grand mother and my father died of dementia. My grand mother at 89 (onset around 82) and my father at 84 (onset 82). I do not know which form of dementia it was, but based on my father's behaviour and rapid decline I suspect FTD. He also lost control of his right hand from one day to the other and soon after over his legs. Doctors suspected a stroke, but not sure about that.
My first question therefore is: Assuming both had FTD, would there be a chance of developing Fals at around 46 or would that be to early?
Now to my symptoms: I do not have any weakness. 2 weeks ago my thenar twitched for 3 days, that disappeared. After a couple of days the twitching reappeared in the sole of my right foot, to spread to my right limb, my left sole of my foot and occassionnally even my whole body. The twitching of the soles of my feet is permanent 24/7.
I know that you consider twitching not an issue per se, but I read that in familial ALS-onset could be by (whole body) twitching.
Assuming familial ALS, do you consider the twitching bothersome?
Thanks for your assistance!
Chris