Unsettled5
Member
- Joined
- May 17, 2013
- Messages
- 17
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- AU
- State
- NS
- City
- Sydney
Hi Pals,
I hope I’m not breaking any of the rules, but I was looking for some information, I sincerely appreciate any information you can provide.
I recently went to my general dr, because the left side of my tongue has been twitching and becoming progressively weaker.
She did some tests, suggested an MRI and referred me to a neurologist, wrote on the referral possible MND. I’m yet to see the neurologist due to the wait list (another 6 weeks away)
Blood tests came back clear (b12 tested too)
MRI came back clear.
The test she performed were, asking me to push my tongue into my cheek on both sides. I was able to push my cheeks out but barely able to hold it there.
Then asked me to protrude my tongue and move it from side to side, which was quite slow and felt weak.
The weird thing is, there isn’t any atrophy, but the sides of my tongue are quite weak, when pushing my tongue out of my mouth, they just fold towards the centre of my tongue.
I have felt the twitching down my throat and it seems to have made my swallowing slower. I feel the twitches in my tongue, but am no longer able to see them, my tongue seems swollen with ridges around the outside and looks smooth in appearance.
My speech has been clumsy and I’ve been feeling seriously fatigued. I also seem to have some balance issues since this started.
I’m wondering if this is similar to any one’s symptoms and also does anyone know any other neurologists in Sydney / Canberra that they could suggest as I’m hoping to see someone before 6 weeks.
Thank you for your time and appreciate anything information you have to offer.
I hope I’m not breaking any of the rules, but I was looking for some information, I sincerely appreciate any information you can provide.
I recently went to my general dr, because the left side of my tongue has been twitching and becoming progressively weaker.
She did some tests, suggested an MRI and referred me to a neurologist, wrote on the referral possible MND. I’m yet to see the neurologist due to the wait list (another 6 weeks away)
Blood tests came back clear (b12 tested too)
MRI came back clear.
The test she performed were, asking me to push my tongue into my cheek on both sides. I was able to push my cheeks out but barely able to hold it there.
Then asked me to protrude my tongue and move it from side to side, which was quite slow and felt weak.
The weird thing is, there isn’t any atrophy, but the sides of my tongue are quite weak, when pushing my tongue out of my mouth, they just fold towards the centre of my tongue.
I have felt the twitching down my throat and it seems to have made my swallowing slower. I feel the twitches in my tongue, but am no longer able to see them, my tongue seems swollen with ridges around the outside and looks smooth in appearance.
My speech has been clumsy and I’ve been feeling seriously fatigued. I also seem to have some balance issues since this started.
I’m wondering if this is similar to any one’s symptoms and also does anyone know any other neurologists in Sydney / Canberra that they could suggest as I’m hoping to see someone before 6 weeks.
Thank you for your time and appreciate anything information you have to offer.