Possible ALS

[KennyGuyte100]

Hi all and pray all is well. My question is as follows: is laryngeal or sternocleidomastoid spasms a symptom of ALS? My reason for acquiring is I keep have a swollen sternocledomastiod and feels like I can hardly breathe, like choking. My ENT performed an endoscopy and saw nothing; however, PET CT Scan revealed inflammation of tonsils and sub gland. Also, after a ER visit on 11/19/22 I started experiencing constant fasciculations or twitching from calf to whole-body. My finger are stiff as a statue. I can’t really say I have clinical weakness as I’m not a doctor. Finally, I was able to expedite an appointment with my Neurologist next and well update.

I understand you all are merely peers to provide personal experience and that’s all I anticipate.

Note: I do suffer from anxiety
I was administered radio active iodine 20 years ago for thyroid Graves’ disease.

 

[affected]

Easy answer is no.
Failure is the symptom that makes any doctor suspect ALS.
Please go ask these questions of your doctor and follow their advice.
All the best.

 

[KennyGuyte100]

Thanks for your perspective. Here what I’ve extremely from coming and considering all the things that could cause my first death. That is if I have a percentage of the faith I claim then why worry. “ Love not this world nor anything in it.”

In closed I’m will continue to ALS Forum therefore I donate because we are all affect because the less greatest commandment “Love thou neighbor as thyself.” Therefore, if you hurt I hurt Godspeed with love

 

[affected]

Remember you cannot post anywhere here as you are not diagnosed.
We also like to keep religion out of here out of respect for our members.
I wish you a fast return to health.

 

[lgelb]

Inflammation of the tonsils, which has nothing to do with ALS, will not be treated by a neurologist, so I would keep in contact with your ENT and internist.

All the best.

 

[KennyGuyte100]

Hello pray all is well. I’m seeking experience with Clonazapam and ALS logical testing after fasciculations presented. 11/19/22 I visited ER for neck spasms only to discover I was administered morphine in my IV then contrast for CT Scan. Next day left calf muscle fasciculations well pulsating until I was told by Neurologist. They spread to right calf and upper body accompanied with jerks and twitching. I saw General Neurologist 12/07/22 she performed Physical Exam all good except she noted mass bulk loss throughout left calf. She scheduled a cluster of test. On the other hand, my PCP referred me to the ALS CLINIC. On 01/06/23 I went to my appointment at the certified ALS CLINIC saw a Neuromuscular Neurologist. He performed Physical, NCS, EMG. After done he sat me down and explained no ALS rather benign fasciculations syndrome. He followed with “I’m happy to tell you do not have ALS because I’ve had to diagnose 2 people today with it.”

I’m in terrible, horrible pain left neck STM, Shoulder, Bicep, Forearm, Glutes both, calf muscles, knees weak bucking, Achilles and foot. Fingers cramping tight thumb red and can’t pinch to pinky on right hand. Suck sensation in neck left side clonazapam 0.5mg stops it but the drug is addictive.

My main seek is why my left side won’t get better or head? I can’t hardly stand or walk fatigued legs and arms after 15 minutes.

I’ve always worked since 15 I had to resign as Electrical Engineer due to my inability to get better smh

 

[ShiftKicker]

Hi Kenny-

I've moved your post to your existing thread. It helps people to see what questions have been asked and answered and provides a timeline for more detailed help.

You are asking people here to provide you answers through the lens of ALS, which is not really useful. You've already been cleared of ALS by a specialist and EMG. Your questions are better answered by someone like a pain specialist. Every answer you will get here would be speculation and would not be nearly as helpful as by someone who can examine you and get to the source of your non-ALS related issues.

 

[affected]

I'm so sorry for what you are still going through.
You need to go back to your doctor and ask these questions. You don't have ALS as explained to you by a specialist, so all medical questions can only be answered by your doctor. All the best.