- Jun 16, 2022
- Learn about ALS
I’m a 48y/o female. I was diagnosed with Hashimotos, fibromyalgia, and BRCA1 years ago. Just over a year ago I started losing my balance and falling to my right side. My dr did a neuro exam in the office and I failed so he sent me to physical therapy. The therapist said I had trunk weakness and thought it might be neurological in nature. About 10 months ago my husband noticed that I was speaking slowly and slurring my words, I hadn’t noticed that but told him I was having difficulty swallowing and my mouth felt like it got tired when eating. Around that time I started getting muscle cramps in my left foot. Not the typical arch cramp but my toes pull together. I figured it was due to long hours on my feet at work. Then the twitches started in the small muscles of my left foot. Approximately 6 months ago I started having difficulty typing with my right hand, it just didn’t want to do what I want it to. I figured I was just tired (more like completely exhausted) from working long hours. Everything has been slowly getting worse so I went to see my gp in April with a list of my symptoms. She said her compass is pointing to als or msa. She scheduled a bunch of labs and a nerve test. All my labs came back normal and I waited a couple months for the nerve study, which I had last week. I haven’t gotten the results of that yet. I had heard of als but had no idea what it was. I read about it and cried. I’m anxious to hear what my results are. Something is clearly wrong. It’s so hard to live in this body that I have to fight to do what I need to do. I’m at the point things feel so heavy to pick up, I can’t squeeze tongs, and I constantly drop things. My right foot has started with the cramping as well. I choke when I eat and drink more often. And it feels like it goes into my nose when I try to swallow. It feels like all of this is happening so fast. Does this sound familiar to anyone? Sorry for such a long post.