buschclub
Member
- Joined
- Dec 1, 2008
- Messages
- 16
- Diagnosis
- 12/2008
- Country
- US
- State
- nc
- City
- charlotte
hello and good day i have been suffering from progressive muscle weakness of the limbs and bulbar muscle's i have been through a gammet of test the last 2 years spinal tap mri's muscle biospy 6 emg's everyone mumbled motor neuron disease or anterior horn cell disease i was recently sent for another emg with dr. jeffery rothstein at john hopkins university one of the top als doctors in the nation who delivered a diagnosis of possible als and said a definte diagnosis could be made in 6 months after follow up emg if symptoms continue and emg is positive again. i have diffuse muscle atrophy increased reflexes in both ankles right arm and knee and bilateral hoffman's sign plus hyperactive jaw jaerk reflex the emg's have been getting slowly worse and always read chronic motor neuron disease or polyradiclopathy or motor neuropathy the two latter ruled out by nerve condution and mri i was wondering how fast or slow some of your diagnosis may have been i am a 29 year old white male and i think my age has allowed me a slower progression coulped with being young has made my diagnosis slower. should i accept this as a diagnosis or what i don'nt know what to do i can;nt tell people i have als without a definate diagnosis but i yearn to give my family some answers thanks and i look forward to your comments. his assement reads as follows
mr. mccary id a 29 year-old man with progressive arm and leg weakness, as well as dysarthia,dysphagia,and dyspnea. on exam he has muscle atrophy in the limbs, mild diffuse muscle weakness,and hyperreflexia. he may possible have amyotrophic lateral scerosis. less likly explanations onclude polyradiculopathy,motor neurophy or myopathy
mr. mccary id a 29 year-old man with progressive arm and leg weakness, as well as dysarthia,dysphagia,and dyspnea. on exam he has muscle atrophy in the limbs, mild diffuse muscle weakness,and hyperreflexia. he may possible have amyotrophic lateral scerosis. less likly explanations onclude polyradiculopathy,motor neurophy or myopathy