KevonLem
New member
- Joined
- Feb 7, 2021
- Messages
- 6
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- WA
- City
- Seattle
Hi everyone. First id like to say how amazing everyone is on this forum. It is clear there a lot of knowledge/mental capital here. I truly appreciate the willingness to help those who may or may not have ALS with your experience and intelligence. So here's my story. On Jan 10th I broke out on my palms with a painful itchy rash, possibly enterovirus (known for ALS assoc.) This resolved after 6 days. I had Guillian Barré syndrome Apr 2019. I'll explain why this is material later. On Jan 17th I began getting fasciculations in my right calf subsequently spreading to quads, hams, triceps, forearms, butt, face and lats. Most fasciculations occur in calf's and quads. I also felt cramps at my rear abdomen wall and shoulder blades at night. At the same time I experienced weakness and a feeling of easy fatigue from shoulders to my fingers. My weakness and at times feeling of tightness in my muscles. During my GBS I had experienced similar but far more rapid arm weakness and fatigue. I am going to see a neurologist soon and getting an LP tomorrow. I was curious if anyone thinks this could be flail arm variant of ALS and whether these symptoms match with any ALS progression. Thanks in advance.
I also forgot to mention that my coordination/balance suddenly got worse.
I also forgot to mention that my coordination/balance suddenly got worse.