dbach
Active member
- Joined
- Jun 18, 2012
- Messages
- 49
- Reason
- PALS
- Diagnosis
- 05/2012
- Country
- CA
- State
- NS
- City
- Glace Bay
Hello Folks:
I wanted to post in the other L-serine post but it was closed so I had to start a new thread.
The maximum dosage being used in the trial is 30 grams daily. I was told by someone that was in the clinical trial, but dropped out as her Husband continued to decline. The found out later he was only getting a very small dosage so they decided to pursue this on their own. He started taking the max 30 grams a day and after only 10 days was able to lie on the floor and lift each foot and draw a figure eight in the air. He could barely lift his foot off the floor when in the clinical trial.
I'm doing the same as them (30 grams daily) and after only six days could lift both arms higher than I could before starting the L-serine. I started taking it April 15th. I'm happy to report these initial findings haven't subsided, but also haven't increased. I'm hoping it's causing the progression to stay where it is for a longer period of time. Last couple of neurologist visits he's said very little change, I'll take it.
This video does a great job explaining the story.
Darryl
I wanted to post in the other L-serine post but it was closed so I had to start a new thread.
The maximum dosage being used in the trial is 30 grams daily. I was told by someone that was in the clinical trial, but dropped out as her Husband continued to decline. The found out later he was only getting a very small dosage so they decided to pursue this on their own. He started taking the max 30 grams a day and after only 10 days was able to lie on the floor and lift each foot and draw a figure eight in the air. He could barely lift his foot off the floor when in the clinical trial.
I'm doing the same as them (30 grams daily) and after only six days could lift both arms higher than I could before starting the L-serine. I started taking it April 15th. I'm happy to report these initial findings haven't subsided, but also haven't increased. I'm hoping it's causing the progression to stay where it is for a longer period of time. Last couple of neurologist visits he's said very little change, I'll take it.
This video does a great job explaining the story.
Darryl