Polymyositis vs. ALS

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Socall

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Sep 11, 2020
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Diagnosis
02/2008
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State
CA
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Fullerton
Maybe I can give you some peace of mind. First stop diagnosing your symptoms on the internet. It’s stressing you out. My story. 2009 fell down /hoarse voice/could not swallow/ drop foot and lost 50 pounds. Went primary doctor. No clue. Got emg did see some issues and mentioned possible als to neurologist. Totally stressed me out. Ended up with peg tube. I am now living with polymyositis. Rare muscle disease. No longer can run/climb stairs. Als is neurological.
 
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Socall

New member
Joined
Sep 11, 2020
Messages
2
Reason
Other
Diagnosis
02/2008
Country
US
State
CA
City
Fullerton
So I am on this site to help others that are so frustrated health issues and getting the run around. I was told I had als and given a death sentence. Emg and blood work and biopsy early results pointed that direction. Guess what. I have all als symptoms but diagnosed with polymyositis. Look it up. Just was at neurologist office last week. Office filled interns amazed of me. I know more about my disease than they do.
 
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