Lena
New member
- Joined
- Nov 30, 2020
- Messages
- 5
- Reason
- DX MND
- Diagnosis
- 11/2020
- Country
- US
- State
- NY
- City
- NEW YORK
Hey, I'm not seeing much here on PMA. I have voice and spine and respiratory involvement, misdiagnosed as Bulbar Onset ALS, then PMA in November 2020. Progress seems relentless; though I remain coordinated I am barely able to stand and can hardly talk. It started with twitching and ridiculous cramps in 2018 but those are rare now.
I don't think I'll last much longer.
What about you?
I don't think I'll last much longer.
What about you?