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AussieChick

Member
Joined
Aug 6, 2016
Messages
21
Reason
PALS
Diagnosis
06/2016
Country
AUS
State
Victoria
City
Bendigo
Hi All, I just found this forum and I'm glad I did!
I was diagnosed with PMA/MND on June 1st this year after many years of inconclusive tests. It wasn't until I lost muscle in my right hand that my neurologist looked deeper to find the cause.

My right hand is affected badly and it is now spreading to my right leg, I have had 1 fall and a couple of close falls because of it.

I have just typed my resignation for work as I feel I am no longer able to continue working safely with my leg deterioration. (I am on my feet for at least 5 hours per shift)

I'm about to start some physiotherapy and Occupational Therapy and am hoping my GP can refer me to a massage therapist for the aching and soreness in my legs and back. :confused:
 

Ells

Distinguished member
Joined
Oct 26, 2015
Messages
206
Reason
PALS
Diagnosis
03/2007
Country
XYZ
State
MY ACCOUNT
City
PLEASE DELETE
Hi & Welcome.

Perhaps you'd change your profile from "ALS" diagnosis to "Other MND" so people can reply to you more appropriately, as PMA differs from ALS.
 

lgelb

Moderator
Forum Supporter
Joined
Nov 5, 2009
Messages
10,104
Reason
Lost a loved one
Diagnosis
00/0000
Country
US
State
WA
City
Seattle
Actually, Ells, an increasing number of studies suggest that there is no "PMA" as such, simply LMN-dominant disease, when they are followed out, just as we have PLS/UMND on the other side of the spectrum. So I think AC is fine as she is.

Welcome, Aussie. Sorry you are having to leave work.

Best,
Laurie
 

affected

Guru status reached
Joined
Apr 26, 2013
Messages
13,328
Reason
Lost a loved one
Diagnosis
05/2013
Country
OZ
State
AU
City
lala land
Welcome aussie, I'm up where the sun shines warmer, Far North Coast NSW near the QLD border :)

Sorry about your diagnosis and having to welcome you to the family xx
 

twitchykitty

Distinguished member
Joined
Feb 17, 2013
Messages
102
Reason
PALS
Diagnosis
01/2013
Country
AUS
State
qld
City
South Burnett
Sorry to welcome another fellow Aussie.

I wouldn't have thought a gp could refer you to a massage therapist? Are you under a private health care fund? Either way I Did find massage helpful just make sure they're not too rough or it could make things worse , plus I found it could set off cramps in my legs.

Now you've stopped working make sure you check out your tpd cover on your super fund/s if you haven't already.
 
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