Ziggy 33 how is your progression? Mine has started to progress further and walking is becoming more of a go for a bit and stop and rest type of activity now. It is good to hear from someone who has been diagnosed with PMA as well. You read online and it says basically we have 5 to 10 years to live. I ask the Dr and he says , it's possible I could out live him. It's the not knowing what or how my body is going to be effected next but that it is slowing down that drives me crazy. Now that i'm off work I have a lot of time to think and that drives me crazy a little too....lol but I would love to hear from more people with PMA or people who started with PMA and developed into ALS. KansasTom all of my blood tests and spinal tap have came out negative, would that weed out adult onset spinal muscular atrophy?