Hi,
My husband has been diagnosed with PMA. We are at 6 years now. He is now 40 years old. We have 2 children. He has no upper motor signs but the progression of his disease continues. He is almost paralyzed from the neck down. He still has a little use of his arms but very little. I now feed him. He has been in a wheelchair for almost 3 years now. I can tell that his neck muscles are getting somewhat weak lately. When getting him up to transfer him into the wheelchair he tends to hang his head on my chest. He has off and on experienced throat weakness that always seems to go away. I can usually tell by hoarseness. This has been occurring since the initial diagnosis. He has had this quite a bit lately which is scaring me. I try to be optimistic that it has always gone away but you always have the progession to ALS on the mind. Is it moving to the upper motor? His breathing test are always good at 80% or so. I will continue thinking positive. I wonder if their is any other caretakers out there experiencing what I am. I thought we could share helpful ideas. Thanks for listining.
My husband has been diagnosed with PMA. We are at 6 years now. He is now 40 years old. We have 2 children. He has no upper motor signs but the progression of his disease continues. He is almost paralyzed from the neck down. He still has a little use of his arms but very little. I now feed him. He has been in a wheelchair for almost 3 years now. I can tell that his neck muscles are getting somewhat weak lately. When getting him up to transfer him into the wheelchair he tends to hang his head on my chest. He has off and on experienced throat weakness that always seems to go away. I can usually tell by hoarseness. This has been occurring since the initial diagnosis. He has had this quite a bit lately which is scaring me. I try to be optimistic that it has always gone away but you always have the progession to ALS on the mind. Is it moving to the upper motor? His breathing test are always good at 80% or so. I will continue thinking positive. I wonder if their is any other caretakers out there experiencing what I am. I thought we could share helpful ideas. Thanks for listining.