Artista
Member
- Joined
- May 30, 2018
- Messages
- 29
- Reason
- Loved one DX
- Diagnosis
- 06/2019
- Country
- US
- State
- CA
- City
- Fremont
Is it the longer one is improving in affected limbs the less likely pls/als? Can plateaus last years?*
I had a thread for my dad but it's closed now.*
He doesn't want to go for more testing since nmd doesn't have treatment. He got the possible pls and that was enough. I'm the one digging. He's doing PT 2 x a week and gym sat and sun every week. Bro goes with him. Sauna and jaccuzi help his left arm/hand with range of motion. Bro says his strength is better than 2 mo. Bro won't entertain pls and keeps dad going, to not slow down unless he's getting tired. So unless something else comes up, no more doc visits for this.*
I guess I'm trying to find a shred of hope thatmaybe he's a lucky one and it's not mnd but I read the other mimics and doesn't fit. He's 79, still works ft at 79. PT has said it would be miracle if he gets noticeably better. Pissed bro off because his balance is better, can walk slowly without cane but uses it for safety. The couple times he almost fell was because he didn't keep hydrated.*
He does a lot pretty independently with bro going every weekend to make it easier on him with chores.*
I have no one to bounce thoughts on.*
My original tread with his story is here..
Als/pls?
I had a thread for my dad but it's closed now.*
He doesn't want to go for more testing since nmd doesn't have treatment. He got the possible pls and that was enough. I'm the one digging. He's doing PT 2 x a week and gym sat and sun every week. Bro goes with him. Sauna and jaccuzi help his left arm/hand with range of motion. Bro says his strength is better than 2 mo. Bro won't entertain pls and keeps dad going, to not slow down unless he's getting tired. So unless something else comes up, no more doc visits for this.*
I guess I'm trying to find a shred of hope thatmaybe he's a lucky one and it's not mnd but I read the other mimics and doesn't fit. He's 79, still works ft at 79. PT has said it would be miracle if he gets noticeably better. Pissed bro off because his balance is better, can walk slowly without cane but uses it for safety. The couple times he almost fell was because he didn't keep hydrated.*
He does a lot pretty independently with bro going every weekend to make it easier on him with chores.*
I have no one to bounce thoughts on.*
My original tread with his story is here..
Als/pls?