etchick
Member
- Joined
- Mar 5, 2009
- Messages
- 11
- Reason
- PALS
- Diagnosis
- 01/2002
- Country
- US
- State
- TN
- City
- Seymour
Hi! I'm new here let me give you a little history. I didn't have any one definitive test for PLS/HSP (hereiditary spastic paraplegia). The doctor's just ruled everything else out. Is this normal or is there a test? Also, my sister has something very similar to this. Although, none of the doctor's that she has been to have told her that she has PLS/HSP. I have tried to tell her that the disease does not manifest the same in everybody and that she probably has what I have. Also, she points out that noone in our family has been diagnosed with this disease. My answer to that is that a name for this disease (or recognition of it) has not been around very long and that most doctor's are unfamiliar with it. Would someone please comment.